Research & Innovation | Overview
We are currently enrolling participants in a research study:
Longitudinal Registry of Patients with Food Protein-Induced Enterocolitis Syndrome (FPIES Registry)
- What is the purpose of the study? Researchers at Boston Children’s Hospital are developing a registry for patients with FPIES, with the goal of advancing knowledge and developing treatments for this condition.
- Who can participate? Children and adults who have been diagnosed with FPIES can participate in this registry.
- What do I have to do if I’m in the study? If you decide to participate in this research study, you will be asked to complete periodic online surveys, which will take about 20 minutes to complete. You will also have the opportunity to periodically provide biospecimens, including blood and stool samples.
- What are the benefits of the study? There is no financial cost. There is no direct benefit of participating. Your participation may benefit society by helping us learn more about FPIES and possible treatments.
If you are interested in participating in the FPIES Registry, or for additional information about this study, please email us at FPIES@childrens.harvard.edu.
Publications
- Psychosocial Impact of Food Allergy on Children and Adults and Practical Interventions
- Piloting a multidisciplinary group education session to support caregivers of children with food protein-induced enterocolitis syndrome (FPIES)
- The evolution of food protein-induced enterocolitis syndrome: From a diagnosis that did not exist to a condition in need of answers
- The Psychosocial Impact of Food Protein-Induced Enterocolitis Syndrome
- A Slice of Food Protein-Induced Enterocolitis Syndrome (FPIES): Insights from 441 Children with FPIES as Provided by Caregivers in the International FPIES Association
- Are we missing food-protein-induced enterocolitis syndrome in adults?