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Patient & Family Resources | Overview

FPIES support organizations

  • The International FPIES Association (I-FPIES): a nonprofit organization that provides education, support, and advocacy for individuals with FPIES and their families. The organization has resources for both caregivers and health care professionals including:
    • FPIES University Video Library: A resource featuring dozens of free videos on FPIES and related topics for patients, caregivers, and health care professionals. 
  • FPIES Foundation: Dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.
  • Kids with Food Allergies: Offers free tools, educational materials, webinars, videos, support forums, a searchable recipe database, and other resources to help families and caregivers to learn how to manage food allergies.

Resources for families with children using feeding tubes

  • Oley Foundation: Offers feeding tube support and an equipment exchange program.
  • Family TIES of Massachusetts: Provides information and referral services, emotional support, and training to parents of children and youth with special needs.
  • Early intervention and a searchable list of programs in Massachusetts  
  • WIC: A nutrition program that provides healthy foods, nutrition education, breastfeeding support, and referrals to health care and other services, free of charge, to Massachusetts families who qualify.  

Financial, formula coverage, and insurance resources