Cleft lip and cleft palate

"Here at Boston Children's Hospital, our training, experience and commitment to innovative care with compassion have made us a national leader in the care of children and adolescents with cleft lip and cleft palate."

----John Meara, MD, DMD, MBA, Boston Children's plastic surgeon-in-chief

The first three months of a pregnancy are a critical time for a growing fetus: In addition to many other developments taking place throughout the body, the structure of the mouth and face also begins to take shape.

Around the fifth to sixth week of pregnancy is when the two sides of a baby’s upper lip will fuse together.  Sometimes the fusing process does not happen properly which results in the upper lip being split, or cleft.

A child with a cleft lip has a visible separation in the skin of their top lip. This space can be a small hole, or it can be a significant opening that extends from the base of the baby’s nose all the way down to their top jaw and gums.

By the eighth to ninth week of pregnancy, the roof of the baby’s mouth (palate) should be formed. The roof of the mouth is made up of two parts:

  • the hard palate, the firm and bony plate hugging the horseshoe-shaped curve of the top teeth
  • the soft palate, the flexible, fleshier tissue that spans the back of the mouth

When the development of one or both of these parts is incomplete, the baby has what is known as a cleft palate.

A child can be born with a cleft lip, a cleft palate or both:

  • when combined, affect one in every 700 babies born in the U.S., making them the fourth most common birth defect nationwide
  • can be unilateral—involving only one side of the mouth and face—or bilateral, involving both
  • are more common in boys than girls 
  • affect more children of Asian, Latino and Native American descent—and fewer of African-American descent—than children of other ethnicities

The good news is that babies with a cleft lip and cleft palate are very treatable. Although children with more advanced cases may require assistance in several areas, and may need multiple procedures over time, there are several minimally invasive treatment options available to help them regain a normal appearance and range of functions.

How Boston Children's Hospital approaches cleft lip and cleft palate

Boston Children's Hospital treats children with cleft lip and/or cleft palate and the combination through our dedicated Cleft Lip and Palate Program.

Our program:

Here at Boston Children’s, our compassionate clinicians also understand the emotional and psychosocial toll cleft lip and cleft palate can cause. We recognize your child as an individual—never “just a patient”—and provide vital resources and support to meet the needs of your entire family.