"The Gift of Experience II," available on Amazon, was written for families with newly diagnosed or young children with hemophilia. This book provides excerpts of conversations with 19 parents from the Boston Bleeding Disorders Center, who share what it’s been like to raise their children from birth to age 6.
Back to school with a bleeding disorder
When your child has a bleeding disorder, sending them to school adds another level of preparedness. The Boston Bleeding Disorders Center is here to help you plan ahead and take proactive steps to ensure that the school experience is as normal and safe as possible. It's important to inform school personnel about your child's bleeding disorders so that they can provide appropriate support. We can help with that. For more information, contact our hemophilia nurse, Maura Padula, RN, or our social worker, Jacqueline Miranda, MSW, LICSW.
Patient and family focused programs
Each year, the Boston Bleeding Disorders Center offers patient and family focused programs. In past years, programs have included:
Half-day education programs
World Hemophilia Day celebrations
Summer events focused on outdoor activities and physical fitness
To learn more about upcoming events, visit our Facebook page.