About the Cardiac Genetics Registry | Overview
Tetralogy of Fallot Genetics Registry
What is a cardiac genetics registry?
This registry is a collection of blood samples and clinical information that will be used to do research on the genetic causes of heart defects. Participation in a registry is different than participation in a specific study. The most important difference is that when donating to a registry, samples and information will be used for a variety of studies related to congenital heart disease over a period of time.