Patient Resources | Overview
If your child has recently been diagnosed with a neuro-immune condition, this is a stressful time for your family. You are being given lots of new information and you probably have a long list of questions. All of the members of our team in the Pediatric Neuro-immunology Program are here to help.
You may also want to visit our patients resources website, which offers information on the wide array of support services available to families at Boston Children’s Hospital.
After the Diagnosis: Neuroimmunology
In this episode of After the Diagnosis presented by the Neuroscience Family Advisory Council at Boston Children's, we focused on opsoclonus-myoclonus syndrome, Hospital. Watch as Mark Gorham, MD; Kitty Petty MA, MEd, LMHC; and Jessiree Pena explain OMS treatment options and recovery.
Advocacy and support groups
These links are provided as resources only. Boston Children’s Hospital and the Neuroimmunology Center don’t necessarily endorse all of the information on these sites.
- Guthy Jackson Charitable Foundation
- National Multiple Sclerosis Society - Pediatric MS
- The Siegel Rare Neuroimmune Association (SRNA) (formerly the Transverse Myelitis Association)
- Long COVID Kids
- Hole in the Wall Gang
- OMS Life Foundation
In this year-in-review from the Network of Pediatric Multiple Sclerosis Centers (NPMSC), researchers and clinicians are learning more about pediatric-onset MS and how best to treat it, with the goal of discovering pathways that lead to cures.
Download this booklet to learn more about studies improving outcomes for pediatric MS patients and read about the patients that are thriving despite their diagnosis.