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Research & Innovation | Overview

Jonathan D. Picker, MBChB, PhD, previously chaired the Clinical and Professional Development Committee of the Fragile X Clinic and Research Consortium (FXCRC) and led the development of the FXCRC guidelines.

Lisa Prock, MD, MPH, is the clinical trials Principal Investigator and has led several medication trials in fragile X syndrome over the past 15 years.

As one of the founding members and part of the FXCRC, our Fragile X Program works to coordinate research from across the nation and around the world, orchestrating projects that allow us to approach fragile X from complementary angles.

A great deal of this research is going on right here at Boston Children’s! Please visit these pages for a list of active studies in FXS:

You can also find out about clinical trials at