Crouzon Syndrome

What is Crouzon Syndrome?

Crouzon syndrome, also known as craniofacial dysostosis, is a complex genetic birth disorder that may affect a child’s face, skull and teeth. In a child with this syndrome, premature fusion of certain skull bones (craniosynostosis) prevents the skull from growing normally and affects the shape of the head and face; sometimes causing increased pressure around the brain.

Common features of this syndrome include:

  • Wide-set, bulging eyes
  • Crossed eyes (strabismus)
  • Beaked nose
  • Underdeveloped upper jaw
  • Protruding lower jaw
  • Overcrowding of teeth

Crouzon syndrome occurs in one out of 61,000 newborns.

The Craniofacial Program at Boston Children's Hospital provides a team approach to the evaluation, diagnosis and treatment of children with this condition. Our experts work together to care for all your child’s needs, from diagnosis and counseling through treatment and follow-up.

Why Choose Boston Children’s Hospital for Crouzon Syndrome Care

Our extensive experience and commitment to innovative and compassionate care have established us as a national leader in treating children with conditions such as Crouzon syndrome.

Families seeking the very best care for their child come to the Craniofacial Program at Boston Children’s for our:

  • Nationally recognized care: U.S. News & World Report ranks Boston Children's Hospital higher in more specialties—including neurosurgery—than any other children's hospital in the country.
  • Experience in craniofacial anomalies: We care for more than 500 patients every year with a range of craniofacial conditions, a high volume among the country’s top programs.
  • Surgical expertise: Our plastic surgeons and neurosurgeons are world renowned for their advanced surgical techniques and precision in treating this complex craniofacial anomaly. Learn more about Crouzon syndrome treatment.
  • Team approach: Crouzon syndrome may affect a child’s hearing, vision, breathing, speech and dental functions. At Boston Children’s Hospital, our dedicated and knowledgeable team of specialists from several disciplines provides you and your child customized and collaborative care. Meet our craniofacial team.
  • Research and innovation: Our clinicians are involved in research that moves us closer to a better understanding of—and treatment for—all deformities of the head and face. Learn more about our craniofacial research.

Make an Appointment

For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email our program coordinator,

International Patients

For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.