Current Environment:

Summary

The goal of the Bronchopulmonary Dysplasia (BPD) Patient Registry is to collect data on individuals with neonatal lung disease to better understand the illness and ultimately improve their care and survival. The Patient Registry was established in 2008 as a means to monitor important trends in the BPD population and to improve understanding, treatment, and survival.

Conditions

Bronchopulmonary Disease

Recruitment Status

Recruiting

Detailed Description

The CHILD Clinic Patient Registry is an observational study designed to identify epidemiologic and genetic factors associated with chronic lung disease in former preterm infants or those with lung disease in the neonatal period.The Patient Registry is used by both clinicians and researchers to better understand BPD and to improve care of individuals with BPD. It is used to assess phenotype and genotype information from former preterm infants with lung disease. Data in the Patient Registry will be analyzed and an regular report of BPD health trends will be created. Using this information, BPD clinicians can address quality improvement initiatives, and examine changing health care issues, including nutritional status, infection control, pulmonary treatment, metabolic and associated genetic variants. The Patient Registry will also play an important role in directing clinical care and in the design of clinical research studies. Researchers use the registry to help in investigating various aspects of neonatal lung diseases like BPD, including medications, diagnostic procedures, and eligibility for clinical trials.

Eligibility Criteria

Inclusion Criteria:

Neonatal respiratory disease

Intervention

Intervention Type

Intervention Name

Other

Patient Registry

Gender

All

Minimum Age

N/A

Maximum Age

35 Years

Download Date

September 29, 2021

Principal Investigator

Lystra Hayden

Primary Contact Information

Lystra Hayden, MD, MMSc

Lystra.Hayden@childrens.harvard.edu

For more information on this trial, visit clinicaltrials.gov.

Contact

For more information and to contact the study team: