Rett Syndrome Program Meet our Team

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Contact the Rett Syndrome Program

  • 1-617-355-8994

Our Rett Syndrome Program brings together a team of professionals from all over Boston Children’s Hospital who have expertise in working with patients with Rett syndrome. We are dedicated to providing the best possible care for your child and to helping her reach her full potential.

Director
Walter Kaufmann, MD, neurology

Physicians and neuropsychologists
Mark Alexander, MD, cardiologist
Ann Marie Bergin, MB, BCH, BAO, epileptologist
Elana Bern, MD, MPH, gastroenterologist
Lois Condie, PhD, neuropsychologist
John Emans, MD, orthopedic surgeon
Laurie Glader, MD, developmental pediatrician
Brian Grove, DDS, MScD, dentist
Nedda Hobbs, MD, developmental pediatrician
Ingrid Holm, MD, MPH, endocrinologist
Christopher Hug, MD, PhD, pulmonologist
Kiran Maski, MD, neurologist (sleep medicine)
Melissa Matson, PhD, neuropsychologist
Linda Nelson, DMD, MScD, dentist
Donna Nimec, MD, physiatrist
Andrea Pettinato, MD, pediatrician (gynecology and adolescent medicine)
Jonathan Picker, MD, PhD, geneticist


Nurses
Mildren Mejia, RN
Jennifer McCrave, CNRN
Lindsay Simmons, RN


Therapists and resource coordinators
Alycia Berg, MS, CCC-SLP, speech-language pathologist
Shuei Kozu, LICSW, social worker
Lisa Rezza, MS, educational resource coordinator

Research coordinators and administrators

Katherine Barnes, BSc, research coordinator
Heather O’Leary, BSc, applications support specialist
Hillary Greene, Educational Resource Coordinator

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO
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