Bladder Exstrophy Program

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Contact the Bladder Exstrophy Program

  • 1-617-355-7796

The Bladder Exstrophy Program at Boston Children’s Hospital cares for children with bladder exstrophy and supports their families. Bladder exstrophy is a rare, complex birth defect involving the urinary, reproductive and intestinal tracts, as well as the musculoskeletal system. During a baby’s development in the womb, the abdominal wall and underlying organs sometimes do not complete proper closure, and the infant is born with the bladder and urethra inside out, and exposed on the outside of the body.

Our approach to bladder exstrophy

If your child has bladder exstrophy, or if there is a suspected diagnosis, our clinicians provide the latest innovative treatments. We also provide psychosocial and emotional support for you and your child as you cope with the challenges of this condition to ensure you are informed at every stage. After the first surgical repair, we closely monitor your child's development, growth and overall health, with particular attention to bladder and kidney function.

Initial surgical reconstruction of bladder exstrophy is, perhaps, the most critical step in your child’s care. There are varied approaches for both technique and timing for this initial surgery. At Boston Children’s, our preference is to repair your child’s exstrophy in a single operation that combines closure of both the bladder and urethra at the initial surgery. Learn more about our innovative treatments and research.

If your baby is diagnosed with bladder exstrophy, our nurse and coordinator are available to answer questions and work through options with you.

Bladder Exstrophy Handbook

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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