Current Environment: Production

Medical Services

Programs & Services

Languages

  • English

Education

Undergraduate School

Undergraduate

Colgate University

1982, Hamilton, NY

Medical School

Harvard Medical School

1986, Boston, MA

Internship

Boston Children's Hospital

1987, Boston, MA

Residency

Boston Children's Hospital

1989, Boston, MA

Fellowship

Boston Children's Hospital

1993, Boston, MA

Certifications

  • American Board of Pediatrics (Cardiology)

Professional History

Dr. Jenkins is a senior member of the Department of Cardiology and the Executive Director for the Center for Applied Pediatric Quality Analytics. She is a clinical researcher with expertise in design and implementation of innovative clinical studies enabled by artificial intelligence to improve healthcare delivery. She is an expert in the management of pulmonary vein stenosis who identified neoproliferation as the mechanism for progression and leads novel treatment protocols with chemotherapeutic agents. She is an expert is quality measurement and developed the RACHS method to assess outcomes after cardiac surgery. She is a national leader in the field of pediatric cardiology through roles in the Congenital Heart Public Health Consortium, American College of Cardiology and American Academy of Pediatrics. She leads the International Quality Improvement Collaborative for Congenital Heart Disease: Improving Care in Low and Middle Income Countries to improve equitable access to life-saving care for CHD in low resource environments.

Publications

  1. Pediatric and Congenital Cardiac Services: An Innovative and Empowering Approach to Global Training and Equitable Care. J Am Heart Assoc. 2025 Apr 15; 14(8):e040003. View Abstract

  2. Generating Risk Reduction Analytics in Complex Cardiac Care Environments (GR2AC3E): Risk Prediction in Congenital Catheterization. J Soc Cardiovasc Angiogr Interv. 2025 Mar; 4(3Part B):102434. View Abstract

  3. Associations With Adverse Postoperative Outcomes in Children Undergoing Atrial Septal Defect Closure in Lower-Resource Settings. JACC Adv. 2024 Dec; 3(12):101332. View Abstract

  4. Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study. Children (Basel). 2024 Aug 17; 11(8). View Abstract

  5. Preoperative Malnutrition Increases Risk of In-Hospital Mortality, Major Infection, and Longer Intensive Care Unit Stay After Ventricular Septal Defect Closure. J Am Heart Assoc. 2024 Jul 02; 13(13):e032662. View Abstract

  6. Voice as a Biomarker of Pediatric Health: A Scoping Review. Children (Basel). 2024 Jun 04; 11(6). View Abstract

  7. Social Determinants of Health Including Child Opportunity Index Leading to Gaps in Care for Patients With Significant Congenital Heart Disease. J Am Heart Assoc. 2024 Feb 20; 13(4):e028883. View Abstract

  8. Socioeconomic Factors Influencing Pediatric Peak Oxygen Consumption Prediction. J Pediatr. 2024 01; 264:113742. View Abstract

  9. Advocacy at the Eighth World Congress of Pediatric Cardiology and Cardiac Surgery. Cardiol Young. 2023 Aug; 33(8):1277-1287. View Abstract

  10. Recommendations for developing effective and safe paediatric and congenital heart disease services in low-income and middle-income countries: a public health framework. BMJ Glob Health. 2023 05; 8(5). View Abstract

  11. COVID-19 international experience in paediatric patients with congenital heart disease. Heart. 2023 04 12; 109(9):710-718. View Abstract

  12. Can the Public-Private Business Model Provide a Sustainable Quality Pediatric Cardiac Surgery Program in Low- and Middle-Income Countries? World J Pediatr Congenit Heart Surg. 2023 05; 14(3):316-325. View Abstract

  13. Exploring procedure duration and risk for serious adverse events during congenital cardiac catheterization. BMJ Surg Interv Health Technol. 2023; 5(1):e000142. View Abstract

  14. Changing epidemiology of congenital heart disease: effect on outcomes and quality of care in adults. Nat Rev Cardiol. 2023 02; 20(2):126-137. View Abstract

  15. Screening and diagnostic imaging at centres performing congenital heart surgery in middle-income countries. Cardiol Young. 2023 May; 33(5):780-786. View Abstract

  16. Progress in Pulmonary Vein Stenosis: Lessons from Success in Treating Pulmonary Arterial Hypertension. Children (Basel). 2022 May 29; 9(6). View Abstract

  17. Lung and Pleural Findings of Children with Pulmonary Vein Stenosis with and without Aspiration: MDCT Evaluation. Children (Basel). 2022 Apr 12; 9(4). View Abstract

  18. Pleuropulmonary MDCT Findings: Comparison between Children with Pulmonary Vein Stenosis and Prematurity-Related Lung Disease. Children (Basel). 2022 Mar 04; 9(3). View Abstract

  19. Pulmonary vein stenosis: Anatomic considerations, surgical management, and outcomes. J Thorac Cardiovasc Surg. 2022 06; 163(6):2198-2207.e3. View Abstract

  20. Aspiration Is Associated with Poor Treatment Response in Pediatric Pulmonary Vein Stenosis. Children (Basel). 2021 Sep 07; 8(9). View Abstract

  21. Thoracic Multidetector Computed Tomography Angiography of Primary Pulmonary Vein Stenosis in Children: Evaluation of Characteristic Extravascular Findings. J Thorac Imaging. 2021 Sep 01; 36(5):318-325. View Abstract

  22. Secondary Pulmonary Vein Stenosis Due to Total Anomalous Pulmonary Venous Connection Repair in Children: Extravascular MDCT Findings. Children (Basel). 2021 Aug 25; 8(9). View Abstract

  23. The Role of Elevated Wall Shear Stress in Progression of Pulmonary Vein Stenosis: Evidence from Two Case Studies. Children (Basel). 2021 Aug 25; 8(9). View Abstract

  24. Extravascular MDCT Findings of Pulmonary Vein Stenosis in Children with Cardiac Septal Defect. Children (Basel). 2021 Jul 30; 8(8). View Abstract

  25. How should we measure research impact in paediatric cardiology? Cardiol Young. 2021 07; 31(7):1205-1206. View Abstract

  26. Patient and Family-Centered Care for Pediatric Intraluminal Pulmonary Vein Stenosis: Case of a 3 Year Old Patient with Focus on Nurse Practitioner Role. Children (Basel). 2021 Jul 01; 8(7). View Abstract

  27. Outcomes in Establishing Individual Vessel Patency for Pediatric Pulmonary Vein Stenosis. Children (Basel). 2021 Mar 10; 8(3). View Abstract

  28. Pulmonary Vein Stenosis: A Rare Disease with a Global Reach. Children (Basel). 2021 Mar 06; 8(3). View Abstract

  29. Clinical Syndromic Phenotypes and the Potential Role of Genetics in Pulmonary Vein Stenosis. Children (Basel). 2021 Feb 10; 8(2). View Abstract

  30. Longer Exposure to Left-to-Right Shunts Is a Risk Factor for Pulmonary Vein Stenosis in Patients with Trisomy 21. Children (Basel). 2021 Jan 01; 8(1). View Abstract

  31. Children at the Heart of Global Cardiac Surgery: An Advocacy Stakeholder Analysis. World J Pediatr Congenit Heart Surg. 2021 Jan; 12(1):48-54. View Abstract

  32. Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process. Arch Dis Child. 2021 09; 106(9):868-876. View Abstract

  33. Preliminary findings on the use of intravascular ultrasound in the assessment of pediatric pulmonary vein stenosis. Catheter Cardiovasc Interv. 2021 02 15; 97(3):E362-E370. View Abstract

  34. Characteristics of Adults With Congenital Heart Defects in the United States. J Am Coll Cardiol. 2020 07 14; 76(2):175-182. View Abstract

  35. Pilot phase experience of the International Quality Improvement Collaborative catheterization registry. Catheter Cardiovasc Interv. 2021 01 01; 97(1):127-134. View Abstract

  36. Systemic Sirolimus to Prevent In-Stent Stenosis in Pediatric Pulmonary Vein Stenosis. Pediatr Cardiol. 2020 Feb; 41(2):282-289. View Abstract

  37. Single-Ventricle Palliation in Low- and Middle-Income Countries. J Am Coll Cardiol. 2019 08 20; 74(7):928-931. View Abstract

  38. Linking world bank development indicators and outcomes of congenital heart surgery in low-income and middle-income countries: retrospective analysis of quality improvement data. BMJ Open. 2019 06 22; 9(6):e028307. View Abstract

  39. Public Health Approach to Improve Outcomes for Congenital Heart Disease Across the Life Span. J Am Heart Assoc. 2019 04 16; 8(8):e009450. View Abstract

  40. Experience participating in the American College of Cardiology Quality NetworkTM: paediatric and adult congenital cardiology collaborative quality improvement. Cardiol Young. 2019 Jan; 29(1):59-66. View Abstract

  41. A National Population-based Study of Adults With Coronary Artery Disease and Coarctation of the Aorta. Am J Cardiol. 2018 12 15; 122(12):2120-2124. View Abstract

  42. Impact of a Standardized Clinical Assessment and Management Plan (SCAMP®) on growth in infants with CHD. Cardiol Young. 2018 Oct; 28(10):1093-1098. View Abstract

  43. Tetralogy of Fallot Repair in Developing Countries: International Quality Improvement Collaborative. Ann Thorac Surg. 2018 11; 106(5):1446-1451. View Abstract

  44. Stroke in Adults With Coarctation of the Aorta: A National Population-Based Study. J Am Heart Assoc. 2018 06 01; 7(11). View Abstract

  45. Public Health Approach to Decrease Mortality for Congenital Heart Defects: Dying Too Soon. J Am Coll Cardiol. 2018 05 29; 71(21):2447-2449. View Abstract

  46. Adjunct Targeted Biologic Inhibition Agents to Treat Aggressive Multivessel Intraluminal Pediatric Pulmonary Vein Stenosis. J Pediatr. 2018 07; 198:29-35.e5. View Abstract

  47. International quality improvement initiatives. Cardiol Young. 2017 Dec; 27(S6):S61-S68. View Abstract

  48. Trisomy 13 and 18: Cardiac Surgery Makes Sense if It Is Part of a Comprehensive Care Strategy. Pediatrics. 2017 11; 140(5). View Abstract

  49. Paucicellular Fibrointimal Proliferation Characterizes Pediatric Pulmonary Vein Stenosis: Clinicopathologic Analysis of 213 Samples From 97 Patients. Am J Surg Pathol. 2017 Sep; 41(9):1198-1204. View Abstract

  50. Pulmonary vein stenosis in patients with Smith-Lemli-Opitz syndrome. Congenit Heart Dis. 2017 Jul; 12(4):475-483. View Abstract

  51. 2017 ACC/AAP/AHA Health Policy Statement on Opportunities and Challenges in Pediatric Drug Development: Learning From Sildenafil. Circ Cardiovasc Qual Outcomes. 2017 07; 10(7). View Abstract

  52. 2017 ACC/AAP/AHA Health Policy Statement on Opportunities and Challenges in Pediatric Drug Development: Learning From Sildenafil. J Am Coll Cardiol. 2017 07 25; 70(4):495-503. View Abstract

  53. Impact of standardized clinical assessment and management plans on resource utilization and costs in children after the arterial switch operation. Congenit Heart Dis. 2017 Dec; 12(6):768-776. View Abstract

  54. Congenital Heart Defects: Amazing Advances and Ongoing Challenges. J Am Coll Cardiol. 2017 06 06; 69(22):2733-2734. View Abstract

  55. Impact of International Quality Improvement Collaborative on Congenital Heart Surgery in Pakistan. Heart. 2017 11; 103(21):1680-1686. View Abstract

  56. Postoperative Infection in Developing World Congenital Heart Surgery Programs: Data From the International Quality Improvement Collaborative. Circ Cardiovasc Qual Outcomes. 2017 04; 10(4). View Abstract

  57. Transposition of the Great Arteries in the Developing World: Surgery and Outcomes. J Am Coll Cardiol. 2017 Jan 03; 69(1):43-51. View Abstract

  58. Advancing the Measurement of Care Coordination in Pediatric Behavioral Health. J Dev Behav Pediatr. 2016 10; 37(8):674-84. View Abstract

  59. Impact of Surgical Complexity on Health-Related Quality of Life in Congenital Heart Disease Surgical Survivors. J Am Heart Assoc. 2016 07 22; 5(7). View Abstract

  60. Congenital Heart Defects in the United States: Estimating the Magnitude of the Affected Population in 2010. Circulation. 2016 Jul 12; 134(2):101-9. View Abstract

  61. Development and Validation of an Agency for Healthcare Research and Quality Indicator for Mortality After Congenital Heart Surgery Harmonized With Risk Adjustment for Congenital Heart Surgery (RACHS-1) Methodology. J Am Heart Assoc. 2016 05 20; 5(5). View Abstract

  62. Development and psychometric characteristics of the pediatric inpatient experience survey (PIES). Int J Qual Health Care. 2016 Apr; 28(2):191-9. View Abstract

  63. Preoperative Determinants of Outcomes of Infant Heart Surgery in a Limited-Resource Setting. Semin Thorac Cardiovasc Surg. 2015; 27(3):331-8. View Abstract

  64. Adjusting for Risk Associated With Pediatric and Congenital Cardiac Catheterization: A Report From the NCDR IMPACT Registry. Circulation. 2015 Nov 17; 132(20):1863-70. View Abstract

  65. Lung Pathology in Pediatric Pulmonary Vein Stenosis. Pediatr Dev Pathol. 2016 May-Jun; 19(3):219-29. View Abstract

  66. Evaluation of Primary Pulmonary Vein Stenosis in Children: Comparison of Radionuclide Perfusion Lung Scan and Angiography. AJR Am J Roentgenol. 2015 Oct; 205(4):873-7. View Abstract

  67. Outcomes of surgery for young children with multivessel pulmonary vein stenosis. J Thorac Cardiovasc Surg. 2015 Oct; 150(4):911-7. View Abstract

  68. Improvement in Interstage Survival in a National Pediatric Cardiology Learning Network. Circ Cardiovasc Qual Outcomes. 2015 Jul; 8(4):428-36. View Abstract

  69. Enhancing Patient Safety in Pediatric Primary Care: Implementing a Patient Safety Curriculum. Clin Pediatr (Phila). 2015 Oct; 54(11):1094-101. View Abstract

  70. Systemic Embolic Complications of Pulmonary Vein Angioplasty in Children. Pediatr Cardiol. 2015 Oct; 36(7):1357-62. View Abstract

  71. Use of a learning network to improve variation in interstage weight gain after the Norwood operation. Congenit Heart Dis. 2014 Nov-Dec; 9(6):512-20. View Abstract

  72. Reducing mortality and infections after congenital heart surgery in the developing world. Pediatrics. 2014 Nov; 134(5):e1422-30. View Abstract

  73. Impact of prenatal diagnosis in survivors of initial palliation of single ventricle heart disease: analysis of the National Pediatric Cardiology Quality Improvement Collaborative database. Pediatr Cardiol. 2015 Feb; 36(2):314-21. View Abstract

  74. D-transposition of the great arteries: the current era of the arterial switch operation. J Am Coll Cardiol. 2014 Aug 05; 64(5):498-511. View Abstract

  75. Clinicians' perspectives on patient satisfaction in adult congenital heart disease clinics--a dimension of health care quality whose time has come. Congenit Heart Dis. 2015 Mar-Apr; 10(2):128-36. View Abstract

  76. Trainee and program director perceptions of quality improvement and patient safety education: preparing for the next accreditation system. Clin Pediatr (Phila). 2014 Nov; 53(13):1248-54. View Abstract

  77. Cognitive complexity of the medical record is a risk factor for major adverse events. Perm J. 2014; 18(1):4-8. View Abstract

  78. Predictors of prolonged length of intensive care unit stay after stage I palliation: a report from the National Pediatric Cardiology Quality Improvement Collaborative. Pediatr Cardiol. 2014 Mar; 35(3):431-40. View Abstract

  79. Hot topics in tetralogy of Fallot. J Am Coll Cardiol. 2013 Dec 10; 62(23):2155-66. View Abstract

  80. Building quality indicators to improve care for adults with congenital heart disease. J Am Coll Cardiol. 2013 Dec 10; 62(23):2244-53. View Abstract

  81. Chest radiographic findings in pediatric patients with intraluminal pulmonary vein stenosis. Congenit Heart Dis. 2014 Mar-Apr; 9(2):151-7. View Abstract

  82. Acute outcome of stent therapy for coarctation of the aorta: results of the coarctation of the aorta stent trial. Catheter Cardiovasc Interv. 2013 Oct 01; 82(4):503-10. View Abstract

  83. Standardized Clinical Assessment And Management Plans (SCAMPs) provide a better alternative to clinical practice guidelines. Health Aff (Millwood). 2013 May; 32(5):911-20. View Abstract

  84. Proximal pulmonary vein stenosis detection in pediatric patients: value of multiplanar and 3-D VR imaging evaluation. Pediatr Radiol. 2013 Aug; 43(8):929-36. View Abstract

  85. Economic and safety implications of introducing fast tracking in congenital heart surgery. Circ Cardiovasc Qual Outcomes. 2013 Mar 01; 6(2):201-7. View Abstract

  86. Risk adjustment for neonatal surgery: a method for comparison of in-hospital mortality. Pediatrics. 2012 Sep; 130(3):e568-74. View Abstract

  87. Mortality with congenital heart defects in England and Wales, 1959-2009. Much progress, but more to do. Arch Dis Child. 2012 Oct; 97(10):859-60. View Abstract

  88. Coarctation of the Aorta Stent Trial (COAST): study design and rationale. Am Heart J. 2012 Jul; 164(1):7-13. View Abstract

  89. Cardiac medical conditions have become the leading cause of death in children with heart disease. Congenit Heart Dis. 2012 Nov-Dec; 7(6):551-8. View Abstract

  90. ACCF/AHA/AMA-PCPI 2011 performance measures for adults with heart failure: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures and the American Medical Association-Physician Consortium for Performance Improvement. J Am Coll Cardiol. 2012 May 15; 59(20):1812-32. View Abstract

  91. Bilateral disease and early age at presentation are associated with shorter survival in patients with congenital heart disease and intraluminal pulmonary vein stenosis. Congenit Heart Dis. 2012 Jul-Aug; 7(4):378-86. View Abstract

  92. The Adult Congenital and Pediatric Cardiology Section: increasing the opportunities for the congenital heart disease community within the American College of Cardiology. J Am Coll Cardiol. 2012 Jan 03; 59(1):84-7. View Abstract

  93. A prospective phase II trial of vinblastine and methotrexate in multivessel intraluminal pulmonary vein stenosis in infants and children. Congenit Heart Dis. 2011 Nov-Dec; 6(6):608-23. View Abstract

  94. Randomized trial of cutting balloon compared with high-pressure angioplasty for the treatment of resistant pulmonary artery stenosis. Circulation. 2011 Nov 29; 124(22):2388-96. View Abstract

  95. Catheterization for Congenital Heart Disease Adjustment for Risk Method (CHARM). JACC Cardiovasc Interv. 2011 Sep; 4(9):1037-46. View Abstract

  96. Berlin Heart EXCOR Pediatric ventricular assist device Investigational Device Exemption study: study design and rationale. Am Heart J. 2011 Sep; 162(3):425-35.e6. View Abstract

  97. Checklist in pediatric cardiac surgery in Brazil: an useful and necessary adaptation of the Quality Improvement Collaborative International Congenital Heart Surgery in Developing Countries. Rev Bras Cir Cardiovasc. 2011 Jul-Sep; 26(3):511-5. View Abstract

  98. Early postoperative severity of illness predicts outcomes after the stage I Norwood procedure. Ann Thorac Surg. 2011 Aug; 92(2):660-5. View Abstract

  99. Statewide and national impact of California's Staffing Law on pediatric cardiac surgery outcomes. J Nurs Adm. 2011 May; 41(5):218-25. View Abstract

  100. Procedure-type risk categories for pediatric and congenital cardiac catheterization. Circ Cardiovasc Interv. 2011 Apr 01; 4(2):188-94. View Abstract

  101. Variation in interstage outpatient care after the Norwood procedure: a report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative. Congenit Heart Dis. 2011 Mar-Apr; 6(2):98-107. View Abstract

  102. Variation in preoperative and intraoperative care for first-stage palliation of single-ventricle heart disease: a report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative. Congenit Heart Dis. 2011 Mar-Apr; 6(2):108-15. View Abstract

  103. Variation in postoperative care following stage I palliation for single-ventricle patients: a report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative. Congenit Heart Dis. 2011 Mar-Apr; 6(2):116-27. View Abstract

  104. ACCF/AHA/ACR/SCAI/SIR/SVM/SVN/SVS 2010 performance measures for adults with peripheral artery disease: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures, the American College of Radiology, the Society for Cardiac Angiography and Interventions, the Society for Interventional Radiology, the Society for Vascular Medicine, the Society for Vascular Nursing, and the Society for Vascular Surgery (Writing Committee to Develop Clinical Performance Measures for Peripheral Artery Disease). J Vasc Nurs. 2011 Mar; 29(1):23-60. View Abstract

  105. ACCF/AHA/ACR/SCAI/SIR/SVM/SVN/SVS 2010 performance measures for adults with peripheral artery disease: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures, the American College of Radiology, the Society for Cardiac Angiography and Interventions, the Society for Interventional Radiology, the Society for Vascular Medicine, the Society for Vascular Nursing, and the Society for Vascular Surgery (Writing Committee to Develop Clinical Performance Measures for Peripheral Artery Disease). J Am Coll Cardiol. 2010 Dec 14; 56(25):2147-81. View Abstract

  106. ACCF/AHA/ACR/SCAI/SIR/SVM/SVN/SVS 2010 performance measures for adults with peripheral artery disease. A Report of the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures, the American College of Radiology, the Society for Cardiac Angiography and Interventions, the Society for Interventional Radiology, the Society for Vascular Medicine, the Society for Vascular Nursing, and the Society for Vascular Surgery (Writing Committee to Develop Clinical Performance Measures for Peripheral Artery Disease). Vasc Med. 2010 Dec; 15(6):481-512. View Abstract

  107. Exercise testing and training in children with congenital heart disease. Circulation. 2010 Nov 09; 122(19):1957-67. View Abstract

  108. ACCF/AHA new insights into the methodology of performance measurement: a report of the American College of Cardiology Foundation/American Heart Association Task Force on performance measures. Circulation. 2010 Nov 16; 122(20):2091-106. View Abstract

  109. Reprint--AACVPR/ACCF/AHA 2010 update: performance measures on cardiac rehabilitation for referral to cardiac rehabilitation/secondary prevention services: a report of the American Association of Cardiovascular and Pulmonary Rehabilitation and the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures (Writing Committee to Develop Clinical Performance Measures for Cardiac Rehabilitation). Phys Ther. 2010 Oct; 90(10):1373-82. View Abstract

  110. Magnetic resonance lymphangiography with a nano-sized gadolinium-labeled dendrimer in small and large animal models. Nanomedicine (Lond). 2010 Oct; 5(8):1183-91. View Abstract

  111. Reprint-AACVPR/ACCF/AHA 2010 Update: Performance Measures on Cardiac Rehabilitation for Referral to Cardiac Rehabilitation/Secondary Prevention Services. Phys Ther. 2010 Oct 01; 90(10):1373-1382. View Abstract

  112. A novel approach to gathering and acting on relevant clinical information: SCAMPs. Congenit Heart Dis. 2010 Jul-Aug; 5(4):343-53. View Abstract

  113. Resource utilization after introduction of a standardized clinical assessment and management plan. Congenit Heart Dis. 2010 Jul-Aug; 5(4):374-81. View Abstract

  114. Analysis of adverse events in pediatric surgery using criteria validated from the adult population: justifying the need for pediatric-focused outcome measures. J Pediatr Surg. 2010 Jun; 45(6):1126-36. View Abstract

  115. Comparison of conventional and cutting balloon angioplasty for congenital and postoperative pulmonary vein stenosis in infants and young children. Catheter Cardiovasc Interv. 2010 Jun 01; 75(7):1084-90. View Abstract

  116. The relationship of nurse staffing, skill mix, and Magnet recognition to institutional volume and mortality for congenital heart surgery. J Nurs Adm. 2010 May; 40(5):226-32. View Abstract

  117. A risk adjustment method for newborns undergoing noncardiac surgery. Ann Surg. 2010 Apr; 251(4):754-8. View Abstract

  118. ACCF/AHA 2010 Position Statement on Composite Measures for Healthcare Performance Assessment: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Performance Measures (Writing Committee to develop a position statement on composite measures). Circulation. 2010 Apr 20; 121(15):1780-91. View Abstract

  119. Adverse event rates in congenital cardiac catheterization - a multi-center experience. Catheter Cardiovasc Interv. 2010 Feb 15; 75(3):389-400. View Abstract

  120. The meaning of cost for families of children with congenital heart disease. J Pediatr Health Care. 2010 Sep-Oct; 24(5):318-25. View Abstract

  121. The IMPACT registry: IMproving Pediatric and Adult Congenital Treatments. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010; 13(1):20-5. View Abstract

  122. Stratification of complexity improves the utility and accuracy of outcomes analysis in a Multi-Institutional Congenital Heart Surgery Database: Application of the Risk Adjustment in Congenital Heart Surgery (RACHS-1) and Aristotle Systems in the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. Pediatr Cardiol. 2009 Nov; 30(8):1117-30. View Abstract

  123. Development of a pediatric cardiology quality improvement collaborative: from inception to implementation. From the Joint Council on Congenital Heart Disease Quality Improvement Task Force. Congenit Heart Dis. 2009 Sep-Oct; 4(5):318-28. View Abstract

  124. Pathways to approval of pediatric cardiac devices in the United States: challenges and solutions. Pediatrics. 2009 Jul; 124(1):e155-62. View Abstract

  125. Nomenclature and databases for the surgical treatment of congenital cardiac disease--an updated primer and an analysis of opportunities for improvement. Cardiol Young. 2008 Dec; 18 Suppl 2:38-62. View Abstract

  126. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease--the perspective of cardiology. Cardiol Young. 2008 Dec; 18 Suppl 2:116-23. View Abstract

  127. Stratification of complexity: the Risk Adjustment for Congenital Heart Surgery-1 method and the Aristotle Complexity Score--past, present, and future. Cardiol Young. 2008 Dec; 18 Suppl 2:163-8. View Abstract

  128. Off-label use of cardiovascular medications in children hospitalized with congenital and acquired heart disease. Circ Cardiovasc Qual Outcomes. 2008 Nov; 1(2):74-83. View Abstract

  129. Clopidogrel in a pediatric population: prescribing practice and outcomes from a single center. Pediatr Cardiol. 2009 Feb; 30(2):99-105. View Abstract

  130. Measurement of technical performance in surgery for congenital heart disease: the stage I Norwood procedure. J Thorac Cardiovasc Surg. 2008 Oct; 136(4):993-7, 997.e1-2. View Abstract

  131. A risk adjusted method for comparing adverse outcomes among practitioners in pediatric and congenital cardiac catheterization. Congenit Heart Dis. 2008 Jul-Aug; 3(4):230-40. View Abstract

  132. Lymphatic obstruction and protein-losing enteropathy in patients with congenital heart disease. Congenit Heart Dis. 2008 Jul-Aug; 3(4):269-76. View Abstract

  133. Diagnostic errors in pediatric echocardiography: development of taxonomy and identification of risk factors. Circulation. 2008 Jun 10; 117(23):2995-3001. View Abstract

  134. Determinants of right ventricular outflow tract conduit longevity: a multinational analysis. Congenit Heart Dis. 2008 May-Jun; 3(3):176-84. View Abstract

  135. Adverse event rates in congenital cardiac catheterization: a new understanding of risks. Congenit Heart Dis. 2008 Mar-Apr; 3(2):90-105. View Abstract

  136. Decreased exercise performance with age in children with hypoplastic left heart syndrome. J Pediatr. 2008 Apr; 152(4):507-12. View Abstract

  137. Improvement in congenital heart surgery in a developing country: the Guatemalan experience. Circulation. 2007 Oct 23; 116(17):1882-7. View Abstract

  138. Application of a complication screening method to congenital heart surgery admissions: a preliminary report. Pediatr Cardiol. 2008 Mar; 29(2):258-65. View Abstract

  139. Safety and efficacy of carvedilol therapy for patients with dilated cardiomyopathy secondary to muscular dystrophy. Pediatr Cardiol. 2008 Mar; 29(2):343-51. View Abstract

  140. The contribution of complications to high resource utilization during congenital heart surgery admissions. Congenit Heart Dis. 2007 Sep-Oct; 2(5):319-26. View Abstract

  141. Complications and risk factors for mortality during congenital heart surgery admissions. Ann Thorac Surg. 2007 Jul; 84(1):147-55. View Abstract

  142. Noninherited risk factors and congenital cardiovascular defects: current knowledge: a scientific statement from the American Heart Association Council on Cardiovascular Disease in the Young: endorsed by the American Academy of Pediatrics. Circulation. 2007 Jun 12; 115(23):2995-3014. View Abstract

  143. Causes of death after congenital heart surgery. Ann Thorac Surg. 2007 Apr; 83(4):1438-45. View Abstract

  144. Measurement of technical performance in congenital heart surgery: a pilot study. Ann Thorac Surg. 2007 Jan; 83(1):179-84. View Abstract

  145. High-risk medical devices, children and the FDA: regulatory challenges facing pediatric mechanical circulatory support devices. ASAIO J. 2007 Jan-Feb; 53(1):4-7. View Abstract

  146. Sustained effects of cardiac rehabilitation in children with serious congenital heart disease. Pediatrics. 2006 Sep; 118(3):e586-93. View Abstract

  147. Fetal tricuspid valve size and growth as predictors of outcome in pulmonary atresia with intact ventricular septum. Pediatrics. 2006 Aug; 118(2):e415-20. View Abstract

  148. Device closure rates of simple atrial septal defects optimized by the STARFlex device. J Am Coll Cardiol. 2006 Aug 01; 48(3):538-44. View Abstract

  149. Racial and ethnic disparities in mortality following congenital heart surgery. Pediatr Cardiol. 2006 May-Jun; 27(3):321-8. View Abstract

  150. Prospective single-arm protocol of carvedilol in children with ventricular dysfunction. Pediatr Cardiol. 2006 May-Jun; 27(3):336-42. View Abstract

  151. Pulmonary vein stenosis: expression of receptor tyrosine kinases by lesional cells. Cardiovasc Pathol. 2006 Mar-Apr; 15(2):91-9. View Abstract

  152. Relationship of surgical approach to neurodevelopmental outcomes in hypoplastic left heart syndrome. Pediatrics. 2006 Jan; 117(1):e90-7. View Abstract

  153. Recent results of pulmonary arterial angioplasty: the differences between proximal and distal lesions. Cardiol Young. 2005 Dec; 15(6):597-604. View Abstract

  154. Follow-up results of Cutting Balloon angioplasty used to relieve stenoses in small pulmonary arteries. Cardiol Young. 2005 Dec; 15(6):605-10. View Abstract

  155. Impact of cardiac rehabilitation on the exercise function of children with serious congenital heart disease. Pediatrics. 2005 Dec; 116(6):1339-45. View Abstract

  156. Factors associated with increased resource utilization for congenital heart disease. Pediatrics. 2005 Sep; 116(3):689-95. View Abstract

  157. Evaluation of quality of care for congenital heart disease. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2005; 157-67. View Abstract

  158. Morphology of bicuspid aortic valve in children and adolescents. J Am Coll Cardiol. 2004 Oct 19; 44(8):1648-51. View Abstract

  159. Transcatheter device closure of congenital and postoperative residual ventricular septal defects. Circulation. 2004 Aug 03; 110(5):501-7. View Abstract

  160. The RACHS-1 risk categories reflect mortality and length of hospital stay in a large German pediatric cardiac surgery population. Eur J Cardiothorac Surg. 2004 Jul; 26(1):12-7. View Abstract

  161. Risk adjustment for congenital heart surgery: the RACHS-1 method. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2004; 7:180-4. View Abstract

  162. Health-related quality of life in children attending a cardiology clinic. Pediatr Cardiol. 2004 Jan-Feb; 25(1):40-8. View Abstract

  163. Morbidities in patients with hypoplastic left heart syndrome. Pediatr Cardiol. 2004 Jan-Feb; 25(1):3-10. View Abstract

  164. Evidence-based referral results in significantly reduced mortality after congenital heart surgery. Pediatrics. 2003 Jul; 112(1 Pt 1):24-8. View Abstract

  165. Clinical outcomes and utility of cardiac catheterization prior to superior cavopulmonary anastomosis. J Thorac Cardiovasc Surg. 2003 Jul; 126(1):272-81. View Abstract

  166. Usefulness of the pediatric electrocardiogram in detecting left ventricular hypertrophy: results from the Prospective Pediatric Pulmonary and Cardiovascular Complications of Vertically Transmitted HIV Infection (P2C2 HIV) multicenter study. Am Heart J. 2003 Apr; 145(4):716-23. View Abstract

  167. Physical and psychosocial health in children who have had Kawasaki disease. Pediatrics. 2003 Mar; 111(3):579-83. View Abstract

  168. Regional racial and ethnic differences in mortality for congenital heart surgery in children may reflect unequal access to care. Pediatr Cardiol. 2003 Mar-Apr; 24(2):103-8. View Abstract

  169. Risk of death for Medicaid recipients undergoing congenital heart surgery. Pediatr Cardiol. 2003 Mar-Apr; 24(2):97-102. View Abstract

  170. Center-specific differences in mortality: preliminary analyses using the Risk Adjustment in Congenital Heart Surgery (RACHS-1) method. J Thorac Cardiovasc Surg. 2002 Jul; 124(1):97-104. View Abstract

  171. Collaborative care for adults with congenital heart disease. Circulation. 2002 May 14; 105(19):2318-23. View Abstract

  172. Cardiac relocation and chest wall reconstruction after separation of thoracopagus conjoined twins with a single heart. J Pediatr Surg. 2002 Mar; 37(3):515-7. View Abstract

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  175. Consensus-based method for risk adjustment for congenital heart surgery. Thorac Cardiovascu. Surg. 2002; 123:110-118.

  176. Perioperative risk factors for development of protein-losing enteropathy following a Fontan procedure. Am J Cardiol. 2001 Nov 15; 88(10):1206-9. View Abstract

  177. A comparison of treatment strategies for hypoplastic left heart syndrome using decision analysis. J Am Coll Cardiol. 2001 Oct; 38(4):1181-7. View Abstract

  178. Healing response to the Clamshell device for closure of intracardiac defects in humans. Catheter Cardiovasc Interv. 2001 Sep; 54(1):101-11. View Abstract

  179. Heart size on chest x-ray as a predictor of cardiac enlargement by echocardiography in children. Pediatr Cardiol. 2001 May-Jun; 22(3):218-22. View Abstract

  180. Method for endocardial activation mapping using a multi-electrode catheter. 2001.

  181. Clinical outcome of fenestrated Fontan patients after closure: the first 10 years. Circulation. 2000 Oct 24; 102(17):2094-9. View Abstract

  182. Survival analysis and risk factors for mortality in transplantation and staged surgery for hypoplastic left heart syndrome. J Am Coll Cardiol. 2000 Oct; 36(4):1178-85. View Abstract

  183. Mechanism of pulmonary vein stenosis in infants with normally connected veins. Am J Cardiol. 2000 Sep 01; 86(5):577-9, A10. View Abstract

  184. Separation of conjoined twins with the twin reversed-arterial-perfusion sequence after prenatal planning with three-dimensional modeling. N Engl J Med. 2000 Aug 10; 343(6):399-402. View Abstract

  185. Sudden death in patients after transcatheter device implantation for congenital heart disease. Am J Cardiol. 2000 Apr 15; 85(8):992-5. View Abstract

  186. Closure of patent foramen ovale for paradoxical emboli: intermediate-term risk of recurrent neurological events following transcatheter device placement. J Am Coll Cardiol. 2000 Apr; 35(5):1311-6. View Abstract

  187. Acute animal studies of the STARFlex system: a new self-centering cardioSEAL septal occluder. Catheter Cardiovasc Interv. 2000 Feb; 49(2):225-33. View Abstract

  188. Separation of conjoined twins with the twin reversed-arterail perfusion sequence after prenatal palnning with three-demensional modeling. New England Journal of Medicine. 2000; 343:399-402.

  189. Validation of relative value scale for congenital heart operations. Ann Thorac Surg. 1998 Sep; 66(3):860-9. View Abstract

  190. Intra-atrial reentrant tachycardia after palliation of congenital heart disease: characterization of multiple macroreentrant circuits using fluoroscopically based three-dimensional endocardial mapping. J Cardiovasc Electrophysiol. 1997 Mar; 8(3):259-70. View Abstract

  191. Multipolar endocardial mapping of the right heart using a basket catheter: acute and chronic animal studies. Pacing Clin Electrophysiol. 1997 Jan; 20(1 Pt 1):51-9. View Abstract

  192. High-density endocardial activation mapping of the right atrium in three dimensions by composition of multielectrode catheter recordings. J Electrocardiol. 1996; 29 Suppl:234-40. View Abstract

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  195. Multipolar endocardial mapping of the right atrium during cardiac catheterization: description of a new technique. J Am Coll Cardiol. 1993 Oct; 22(4):1105-10. View Abstract

  196. Individual pulmonary vein size and survival in infants with totally anomalous pulmonary venous connection. J Am Coll Cardiol. 1993 Jul; 22(1):201-6. View Abstract

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My interest in medicine started at a young age when my mother shared nursing stories at our dinner table. The passion and commitment of pediatric caregivers to vulnerable children and families was something I wanted to be part of. As an artist and scientist, I bring creative solutions to the bedside to address difficult problems.

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