Rare Anemias and Iron Disorders Program Overview

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Contact the Rare Anemias and Iron Disorders Program

The Rare Anemias and Iron Disorders Program at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center provides comprehensive care for children with all types of rare anemias and iron disorders, as well as ongoing medical management and access to new treatment approaches through our clinical research program. We treat a variety of conditions, including congenital sideroblastic anemia, rare hemoglobinopathies, congenital iron deficiency (iron refractory iron deficiency anemia), and polycythemia, among others.

Dana-Farber/Boston Children’s is an integrated pediatric hematology and oncology partnership between Dana-Farber Cancer Institute and Boston Children’s Hospital. We offer, in one specialized program, the full spectrum of services that are needed for diagnosis, treatment and ongoing care of even the rarest and hard-to-treat conditions.

Patients in the Rare Anemias and Iron Disorders Program are cared for by a team that includes a pediatric hematologist with expertise in inherited iron deficiency disorders, sideroblastic anemia and iron overload. In addition, our nurse practitioner and physician assistant specialize in anemia, hemoglobinopathies and red blood cell disorders.

A major focus of our research program, which focuses on anemia and red blood cell disorders, is translating laboratory findings to the patient’s bedside. Scientists in our program discovered a gene for a rare form of inherited iron deficiency that may benefit the general public, particularly those with iron deficiency that does not respond to iron supplements.

Learn more about our Rare Anemias and Iron Disorders Program on the Dana-Farber/Boston Children’s website.

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- Sandra L. Fenwick, President and CEO

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