1 Boston Children's Hospital | Education
Undergraduate School
Biochemical Sciences
Harvard College
1997, Cambridge, MA
Medical School
Harvard Medical School
2001, Cambridge, MA
Internship
Pediatrics
Boston Children's Hospital
2002, Boston, MA
Residency
Pediatrics Boston Combined Residency Program (BCRP)
Boston, MA
Fellowship
Pediatric Pulmonology Boston Children's Hospital
2007, Boston, MA
Graduate School
Harvard School of Public Health
2007, Boston, MA
1 Boston Children's Hospital | Publications
The effects of series elastic stiffness and cutaneous sensitivity on leg muscle reflex responses to unanticipated slips during walking. Exp Brain Res. 2025 May 20; 243(6):150. View The effects of series elastic stiffness and cutaneous sensitivity on leg muscle reflex responses to unanticipated slips during walking. Abstract
Cystic Fibrosis Learning Network Telehealth Innovation Lab During the COVID-19 Pandemic: Impact on Access to Care, Outcomes, and a New CF Care Model. Pediatr Pulmonol. 2025 May; 60(5):e71102. View Cystic Fibrosis Learning Network Telehealth Innovation Lab During the COVID-19 Pandemic: Impact on Access to Care, Outcomes, and a New CF Care Model. Abstract
Long-Term Safety and Efficacy of Elexacaftor/Tezacaftor/Ivacaftor in Adults and Adolescents with Cystic Fibrosis and at Least One F508del Allele: A Phase 3, Open-Label Extension Study. Am J Respir Crit Care Med. 2025 Apr 10. View Long-Term Safety and Efficacy of Elexacaftor/Tezacaftor/Ivacaftor in Adults and Adolescents with Cystic Fibrosis and at Least One F508del Allele: A Phase 3, Open-Label Extension Study. Abstract
The Frequency and Potential Implications of HFE Genetic Variants in Children With Cystic Fibrosis. Pediatr Pulmonol. 2025 Mar; 60(3):e71042. View The Frequency and Potential Implications of HFE Genetic Variants in Children With Cystic Fibrosis. Abstract
Predictive control of musculotendon loads across fast and slow-twitch muscles in a simulated system with parallel actuation. Wearable Technol. 2025; 6:e8. View Predictive control of musculotendon loads across fast and slow-twitch muscles in a simulated system with parallel actuation. Abstract
Acceptability of Telehealth Post-Pandemic Among Clinicians Across the United States Caring for People With Cystic Fibrosis. Pediatr Pulmonol. 2025 Feb; 60(2):e70000. View Acceptability of Telehealth Post-Pandemic Among Clinicians Across the United States Caring for People With Cystic Fibrosis. Abstract
Male sexual and reproductive health in cystic fibrosis: A concept mapping study. J Cyst Fibros. 2025 Jan 28. View Male sexual and reproductive health in cystic fibrosis: A concept mapping study. Abstract
Innovations in Evaluating Ambulatory Costs of Cystic Fibrosis Care: A Comparative Study Across Multidisciplinary Care Centers in Ireland and the United States. NEJM Catal Innov Care Deliv. 2025 Feb; 6(2). View Innovations in Evaluating Ambulatory Costs of Cystic Fibrosis Care: A Comparative Study Across Multidisciplinary Care Centers in Ireland and the United States. Abstract
Electromyography-Informed Estimates of Joint Contact Forces Within the Lower Back and Knee Joints During a Diverse Set of Industry-Relevant Manual Lifting Tasks. J Appl Biomech. 2025 Apr 01; 41(2):151-160. View Electromyography-Informed Estimates of Joint Contact Forces Within the Lower Back and Knee Joints During a Diverse Set of Industry-Relevant Manual Lifting Tasks. Abstract
"It's Like You're Feeding Your Child Twice": Barriers and Facilitators to Human Milk Feeding Children With Cystic Fibrosis. Pediatr Pulmonol. 2025 Jan; 60(1):e27497. View "It's Like You're Feeding Your Child Twice": Barriers and Facilitators to Human Milk Feeding Children With Cystic Fibrosis. Abstract
Center of mass states render multijoint torques throughout standing balance recovery. J Neurophysiol. 2025 Jan 01; 133(1):206-221. View Center of mass states render multijoint torques throughout standing balance recovery. Abstract
What does it mean to be "healthy" when taking elexacaftor/tezacaftor/ivacaftor (ETI)? A qualitative study. J Cyst Fibros. 2025 Jan; 24(1):187-192. View What does it mean to be "healthy" when taking elexacaftor/tezacaftor/ivacaftor (ETI)? A qualitative study. Abstract
Qualitative understanding of experiences of people with cystic fibrosis in a treatment discontinuation trial: The QUEST study. Contemp Clin Trials. 2025 Jan; 148:107752. View Qualitative understanding of experiences of people with cystic fibrosis in a treatment discontinuation trial: The QUEST study. Abstract
Reduced Achilles tendon stiffness in aging associates with higher metabolic cost of walking. J Appl Physiol (1985). 2024 Dec 01; 137(6):1541-1548. View Reduced Achilles tendon stiffness in aging associates with higher metabolic cost of walking. Abstract
Plasma Microbial Cell-Free DNA Metagenomic Next-Generation Sequencing in People With Cystic Fibrosis. Pediatr Pulmonol. 2025 Jan; 60(1):e27380. View Plasma Microbial Cell-Free DNA Metagenomic Next-Generation Sequencing in People With Cystic Fibrosis. Abstract
Impact of Discontinuing Both Hypertonic Saline and Dornase Alfa after Elexacaftor-Tezacaftor-Ivacaftor in Cystic Fibrosis. Ann Am Thorac Soc. 2024 Nov; 21(11):1507-1515. View Impact of Discontinuing Both Hypertonic Saline and Dornase Alfa after Elexacaftor-Tezacaftor-Ivacaftor in Cystic Fibrosis. Abstract
Factors associated with prescription of elexacaftor/tezacaftor/ivacaftor among people with cystic fibrosis aged 12 years or older with at least one F508del allele. J Cyst Fibros. 2025 Jan; 24(1):135-141. View Factors associated with prescription of elexacaftor/tezacaftor/ivacaftor among people with cystic fibrosis aged 12 years or older with at least one F508del allele. Abstract
Safety and tolerability of a low glycemic load dietary intervention in adults with cystic fibrosis: a pilot study. Front Nutr. 2024; 11:1441201. View Safety and tolerability of a low glycemic load dietary intervention in adults with cystic fibrosis: a pilot study. Abstract
Self-reported chronic therapy use after 24-weeks of follow-up by participants who completed the simplify randomized, controlled trial. J Cyst Fibros. 2025 Jan; 24(1):91-97. View Self-reported chronic therapy use after 24-weeks of follow-up by participants who completed the simplify randomized, controlled trial. Abstract
Overview and Updates in Pediatric Pulmonary Medicine. Clin Chest Med. 2024 Sep; 45(3):xiii-xiv. View Overview and Updates in Pediatric Pulmonary Medicine. Abstract
Center of mass states render multi-joint torques throughout standing balance recovery. bioRxiv. 2024 Aug 19. View Center of mass states render multi-joint torques throughout standing balance recovery. Abstract
Development and preliminary validation of the personalized cystic fibrosis medication questionnaire (PCF-MQ). J Cyst Fibros. 2024 Nov; 23(6):1100-1105. View Development and preliminary validation of the personalized cystic fibrosis medication questionnaire (PCF-MQ). Abstract
Cross-Cutting mHealth Behavior Change Techniques to Support Treatment Adherence and Self-Management of Complex Medical Conditions: Systematic Review. JMIR Mhealth Uhealth. 2024 May 01; 12:e49024. View Cross-Cutting mHealth Behavior Change Techniques to Support Treatment Adherence and Self-Management of Complex Medical Conditions: Systematic Review. Abstract
Advances in Care and Outcomes for Children with Cystic Fibrosis. Clin Chest Med. 2024 Sep; 45(3):625-637. View Advances in Care and Outcomes for Children with Cystic Fibrosis. Abstract
The effects of plantarflexor weakness and reduced tendon stiffness with aging on gait stability. PLoS One. 2024; 19(4):e0302021. View The effects of plantarflexor weakness and reduced tendon stiffness with aging on gait stability. Abstract
A Data-Driven Approach to Estimate Human Center of Mass State During Perturbed Locomotion Using Simulated Wearable Sensors. Ann Biomed Eng. 2024 Aug; 52(8):2013-2023. View A Data-Driven Approach to Estimate Human Center of Mass State During Perturbed Locomotion Using Simulated Wearable Sensors. Abstract
Dynamic Duo: Design and Validation of an Autonomous Frontal and Sagittal Actuating Hip Exoskeleton for Balance Modulation During Perturbed Locomotion. IEEE Robot Autom Lett. 2024 May; 9(5):3995-4002. View Dynamic Duo: Design and Validation of an Autonomous Frontal and Sagittal Actuating Hip Exoskeleton for Balance Modulation During Perturbed Locomotion. Abstract
An emotional journey: caregiver experiences with gastrostomy tube decision-making for children with cystic fibrosis. J Cyst Fibros. 2024 Sep; 23(5):1000-1006. View An emotional journey: caregiver experiences with gastrostomy tube decision-making for children with cystic fibrosis. Abstract
Continuous glucose monitoring and advanced glycation endproducts for prediction of clinical outcomes and development of cystic fibrosis-related diabetes in adults with CF. Front Endocrinol (Lausanne). 2024; 15:1293709. View Continuous glucose monitoring and advanced glycation endproducts for prediction of clinical outcomes and development of cystic fibrosis-related diabetes in adults with CF. Abstract
Habitually wearing high heels may improve user walking economy in any footwear. J Appl Physiol (1985). 2024 Mar 01; 136(3):567-572. View Habitually wearing high heels may improve user walking economy in any footwear. Abstract
Safety and Pharmacokinetics Following Oral or Intravenous Lefamulin in Adults With Cystic Fibrosis. Clin Ther. 2024 02; 46(2):96-103. View Safety and Pharmacokinetics Following Oral or Intravenous Lefamulin in Adults With Cystic Fibrosis. Abstract
Randomized Trial of the Insulin-Only iLet Bionic Pancreas for the Treatment of Cystic Fibrosis- Related Diabetes. Diabetes Care. 2024 Jan 01; 47(1):101-108. View Randomized Trial of the Insulin-Only iLet Bionic Pancreas for the Treatment of Cystic Fibrosis- Related Diabetes. Abstract
Reduced Achilles tendon stiffness in aging persists at matched activations and associates with higher metabolic cost of walking. bioRxiv. 2023 Nov 27. View Reduced Achilles tendon stiffness in aging persists at matched activations and associates with higher metabolic cost of walking. Abstract
Clinician perspectives and practices related to sexual and reproductive care provision for males with cystic fibrosis. J Cyst Fibros. 2024 May; 23(3):417-423. View Clinician perspectives and practices related to sexual and reproductive care provision for males with cystic fibrosis. Abstract
Simulations suggest walking with reduced propulsive force would not mitigate the energetic consequences of lower tendon stiffness. PLoS One. 2023; 18(10):e0293331. View Simulations suggest walking with reduced propulsive force would not mitigate the energetic consequences of lower tendon stiffness. Abstract
Attenuation of muscle spindle firing with artificially increased series compliance during stretch of relaxed muscle. Exp Physiol. 2024 01; 109(1):148-158. View Attenuation of muscle spindle firing with artificially increased series compliance during stretch of relaxed muscle. Abstract
Predictive Control of Peak Achilles Tendon Force in a Simulated System of the Human Ankle Joint with a Parallel Artificial Actuator During Hopping. IEEE Int Conf Rehabil Robot. 2023 09; 2023:1-6. View Predictive Control of Peak Achilles Tendon Force in a Simulated System of the Human Ankle Joint with a Parallel Artificial Actuator During Hopping. Abstract
American Society of Biomechanics Journal of Biomechanics Award 2021: Exploring the Functional Boundaries and Metabolic Consequences of Triceps Surae Force-Length Relations during Walking. J Biomech. 2023 09; 158:111771. View American Society of Biomechanics Journal of Biomechanics Award 2021: Exploring the Functional Boundaries and Metabolic Consequences of Triceps Surae Force-Length Relations during Walking. Abstract
Attenuation of muscle spindle firing with artificially increased series compliance during stretch of relaxed muscle. bioRxiv. 2023 May 09. View Attenuation of muscle spindle firing with artificially increased series compliance during stretch of relaxed muscle. Abstract
Partners in research: The success with therapies research consortium and the CF community unite to improve self-management. J Cyst Fibros. 2023 09; 22(5):830-835. View Partners in research: The success with therapies research consortium and the CF community unite to improve self-management. Abstract
The influence of induced gait asymmetry on joint reaction forces. J Biomech. 2023 05; 153:111581. View The influence of induced gait asymmetry on joint reaction forces. Abstract
Perturbing the muscle work loop paradigm to unravel the neuromechanics of unsteady locomotion. J Exp Biol. 2023 04 01; 226(7). View Perturbing the muscle work loop paradigm to unravel the neuromechanics of unsteady locomotion. Abstract
High deductible insurance plans impart economic burden for people with cystic fibrosis. Pediatr Pulmonol. 2023 06; 58(6):1798-1801. View High deductible insurance plans impart economic burden for people with cystic fibrosis. Abstract
How many billions is enough? Prioritizing profits over patients with cystic fibrosis. Pediatr Pulmonol. 2023 05; 58(5):1595-1597. View How many billions is enough? Prioritizing profits over patients with cystic fibrosis. Abstract
Long-term tezacaftor/ivacaftor safety and efficacy in people with cystic fibrosis and an F508del-CFTR mutation: 96-week, open-label extension of the EXTEND trial. J Cyst Fibros. 2023 May; 22(3):464-470. View Long-term tezacaftor/ivacaftor safety and efficacy in people with cystic fibrosis and an F508del-CFTR mutation: 96-week, open-label extension of the EXTEND trial. Abstract
EFFECT OF ELEXACAFTOR/TEZACAFTOR/IVACAFTOR ON ANNUAL RATE OF LUNG FUNCTION DECLINE IN PEOPLE WITH CYSTIC FIBROSIS. J Cyst Fibros. 2023 May; 22(3):402-406. View EFFECT OF ELEXACAFTOR/TEZACAFTOR/IVACAFTOR ON ANNUAL RATE OF LUNG FUNCTION DECLINE IN PEOPLE WITH CYSTIC FIBROSIS. Abstract
Clinician perspectives on assessing for disordered eating and body image disturbance in adolescents and young adults with cystic fibrosis. J Cyst Fibros. 2023 May; 22(3):431-435. View Clinician perspectives on assessing for disordered eating and body image disturbance in adolescents and young adults with cystic fibrosis. Abstract
Discontinuation versus continuation of hypertonic saline or dornase alfa in modulator treated people with cystic fibrosis (SIMPLIFY): results from two parallel, multicentre, open-label, randomised, controlled, non-inferiority trials. Lancet Respir Med. 2023 04; 11(4):329-340. View Discontinuation versus continuation of hypertonic saline or dornase alfa in modulator treated people with cystic fibrosis (SIMPLIFY): results from two parallel, multicentre, open-label, randomised, controlled, non-inferiority trials. Abstract
Rate of Lung Function Decline in People with Cystic Fibrosis Having a Residual Function Gene Mutation. Pulm Ther. 2022 Dec; 8(4):385-395. View Rate of Lung Function Decline in People with Cystic Fibrosis Having a Residual Function Gene Mutation. Abstract
Sexual and reproductive health experiences and care of adult women with cystic fibrosis. J Cyst Fibros. 2023 03; 22(2):223-233. View Sexual and reproductive health experiences and care of adult women with cystic fibrosis. Abstract
Real-world feasibility of short-term, unsupervised home spirometry in CF. Pediatr Pulmonol. 2022 12; 57(12):3129-3135. View Real-world feasibility of short-term, unsupervised home spirometry in CF. Abstract
Eating disorders in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol. 2022 11; 57(11):2791-2797. View Eating disorders in adolescents and young adults with cystic fibrosis. Abstract
Author Reply to: Empowering Without Misinforming Adolescents and Young Adults with Cystic Fibrosis. Comment on "Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study". JMIR Pediatr Parent. 2022 May 25; 5(2):e39450. View Author Reply to: Empowering Without Misinforming Adolescents and Young Adults with Cystic Fibrosis. Comment on "Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study". Abstract
Continuous Glucose Monitoring and HbA1c in Cystic Fibrosis: Clinical Correlations and Implications for CFRD Diagnosis. J Clin Endocrinol Metab. 2022 03 24; 107(4):e1444-e1454. View Continuous Glucose Monitoring and HbA1c in Cystic Fibrosis: Clinical Correlations and Implications for CFRD Diagnosis. Abstract
Understanding the Intersection between Gender Transition and Health Outcomes in Cystic Fibrosis. Ann Am Thorac Soc. 2022 03; 19(3):504-506. View Understanding the Intersection between Gender Transition and Health Outcomes in Cystic Fibrosis. Abstract
A Phase 3, open-label, 96-week trial to study the safety, tolerability, and efficacy of tezacaftor/ivacaftor in children = 6 years of age homozygous for F508del or heterozygous for F508del and a residual function CFTR variant. J Cyst Fibros. 2022 07; 21(4):675-683. View A Phase 3, open-label, 96-week trial to study the safety, tolerability, and efficacy of tezacaftor/ivacaftor in children = 6 years of age homozygous for F508del or heterozygous for F508del and a residual function CFTR variant. Abstract
Men's sexual and reproductive health in cystic fibrosis in the era of highly effective modulator therapies-A qualitative study. J Cyst Fibros. 2022 07; 21(4):657-661. View Men's sexual and reproductive health in cystic fibrosis in the era of highly effective modulator therapies-A qualitative study. Abstract
Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis. J Patient Exp. 2022; 9:23743735221077527. View Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis. Abstract
The Relationship between Body Composition, Dietary Intake, Physical Activity, and Pulmonary Status in Adolescents and Adults with Cystic Fibrosis. Nutrients. 2022 Jan 12; 14(2). View The Relationship between Body Composition, Dietary Intake, Physical Activity, and Pulmonary Status in Adolescents and Adults with Cystic Fibrosis. Abstract
Exploring provider attitudes and perspectives related to men's health in cystic fibrosis. J Cyst Fibros. 2022 07; 21(4):652-656. View Exploring provider attitudes and perspectives related to men's health in cystic fibrosis. Abstract
Trajectories of the Transition Readiness Assessment Questionnaire Among Youth With Inflammatory Bowel Disease. J Clin Gastroenterol. 2022 10 01; 56(9):805-809. View Trajectories of the Transition Readiness Assessment Questionnaire Among Youth With Inflammatory Bowel Disease. Abstract
Financial impacts of the COVID-19 pandemic on cystic fibrosis care: lessons for the future. J Cyst Fibros. 2021 12; 20 Suppl 3:16-20. View Financial impacts of the COVID-19 pandemic on cystic fibrosis care: lessons for the future. Abstract
Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic. J Cyst Fibros. 2021 12; 20 Suppl 3:41-46. View Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic. Abstract
Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network. J Cyst Fibros. 2021 12; 20 Suppl 3:57-63. View Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network. Abstract
Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs. J Cyst Fibros. 2021 12; 20 Suppl 3:9-13. View Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs. Abstract
Prevalence, variability, and predictors of sinus surgery in pediatric patients with cystic fibrosis. Pediatr Pulmonol. 2021 12; 56(12):4029-4038. View Prevalence, variability, and predictors of sinus surgery in pediatric patients with cystic fibrosis. Abstract
The effect of elexacaftor/tezacaftor/ivacaftor (ETI) on glycemia in adults with cystic fibrosis. J Cyst Fibros. 2022 03; 21(2):258-263. View The effect of elexacaftor/tezacaftor/ivacaftor (ETI) on glycemia in adults with cystic fibrosis. Abstract
Favorable Clinician Acceptability of Telehealth as Part of the Cystic Fibrosis Care Model during the COVID-19 Pandemic. Ann Am Thorac Soc. 2021 09; 18(9):1588-1592. View Favorable Clinician Acceptability of Telehealth as Part of the Cystic Fibrosis Care Model during the COVID-19 Pandemic. Abstract
Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study. JMIR Pediatr Parent. 2021 Aug 16; 4(3):e25014. View Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study. Abstract
Evaluating the Impact of Stopping Chronic Therapies after Modulator Drug Therapy in Cystic Fibrosis: The SIMPLIFY Clinical Trial Study Design. Ann Am Thorac Soc. 2021 08; 18(8):1397-1405. View Evaluating the Impact of Stopping Chronic Therapies after Modulator Drug Therapy in Cystic Fibrosis: The SIMPLIFY Clinical Trial Study Design. Abstract
Disease burden in people with cystic fibrosis heterozygous for F508del and a minimal function mutation. J Cyst Fibros. 2022 01; 21(1):96-103. View Disease burden in people with cystic fibrosis heterozygous for F508del and a minimal function mutation. Abstract
The Effects of Ivacaftor on Bone Density and Microarchitecture in Children and Adults with Cystic Fibrosis. J Clin Endocrinol Metab. 2021 03 08; 106(3):e1248-e1261. View The Effects of Ivacaftor on Bone Density and Microarchitecture in Children and Adults with Cystic Fibrosis. Abstract
Ivacaftor in Infants Aged 4 to <12 Months with Cystic Fibrosis and a Gating Mutation. Results of a Two-Part Phase 3 Clinical Trial. Am J Respir Crit Care Med. 2021 03 01; 203(5):585-593. View Ivacaftor in Infants Aged 4 to <12 Months with Cystic Fibrosis and a Gating Mutation. Results of a Two-Part Phase 3 Clinical Trial. Abstract
Rapid Implementation of Telehealth Services in a Pediatric Pulmonary Clinic During COVID-19. Pediatrics. 2021 07; 148(1). View Rapid Implementation of Telehealth Services in a Pediatric Pulmonary Clinic During COVID-19. Abstract
An evaluation of healthcare utilization and clinical charges in children and adults with cystic fibrosis. Pediatr Pulmonol. 2021 05; 56(5):928-938. View An evaluation of healthcare utilization and clinical charges in children and adults with cystic fibrosis. Abstract
Long-term safety and efficacy of tezacaftor-ivacaftor in individuals with cystic fibrosis aged 12 years or older who are homozygous or heterozygous for Phe508del CFTR (EXTEND): an open-label extension study. Lancet Respir Med. 2021 07; 9(7):733-746. View Long-term safety and efficacy of tezacaftor-ivacaftor in individuals with cystic fibrosis aged 12 years or older who are homozygous or heterozygous for Phe508del CFTR (EXTEND): an open-label extension study. Abstract
Improvement of Pulmonary Function in Cystic Fibrosis Patients following Endoscopic Sinus Surgery. Laryngoscope. 2021 09; 131(9):1930-1938. View Improvement of Pulmonary Function in Cystic Fibrosis Patients following Endoscopic Sinus Surgery. Abstract
Tribulations and (clinical) trials in cystic fibrosis. J Cyst Fibros. 2021 03; 20(2):188-190. View Tribulations and (clinical) trials in cystic fibrosis. Abstract
Transition Readiness Not Associated With Measures of Health in Youth With IBD. Inflamm Bowel Dis. 2021 01 01; 27(1):49-57. View Transition Readiness Not Associated With Measures of Health in Youth With IBD. Abstract
Men's health in the modern era of cystic fibrosis. J Cyst Fibros. 2021 11; 20(6):e121-e123. View Men's health in the modern era of cystic fibrosis. Abstract
Monogenic Diabetes in a Child with Cystic Fibrosis: A Case Report and Review of the Literature. J Endocr Soc. 2021 Jan 01; 5(1):bvaa165. View Monogenic Diabetes in a Child with Cystic Fibrosis: A Case Report and Review of the Literature. Abstract
Decreased survival in cystic fibrosis patients with a positive screen for depression. J Cyst Fibros. 2021 01; 20(1):120-126. View Decreased survival in cystic fibrosis patients with a positive screen for depression. Abstract
Survey of patients with cystic fibrosis and caregivers decisions regarding CFTR modulators. Pediatr Pulmonol. 2020 11; 55(11):2983-2989. View Survey of patients with cystic fibrosis and caregivers decisions regarding CFTR modulators. Abstract
Caregiver Burden Due to Pulmonary Exacerbations in Patients with Cystic Fibrosis. J Pediatr. 2019 12; 215:164-171.e2. View Caregiver Burden Due to Pulmonary Exacerbations in Patients with Cystic Fibrosis. Abstract
Male gender and unemployment are associated with lower levels of perceived social support in adults with cystic fibrosis. J Psychosom Res. 2019 12; 127:109858. View Male gender and unemployment are associated with lower levels of perceived social support in adults with cystic fibrosis. Abstract
Medical Deferred Action - Living on Borrowed Time. N Engl J Med. 2019 Oct 24; 381(17):1601-1603. View Medical Deferred Action - Living on Borrowed Time. Abstract
Predictors of pulmonary exacerbation treatment in cystic fibrosis. J Cyst Fibros. 2020 05; 19(3):407-414. View Predictors of pulmonary exacerbation treatment in cystic fibrosis. Abstract
A phase 3 study of tezacaftor in combination with ivacaftor in children aged 6 through 11?years with cystic fibrosis. J Cyst Fibros. 2019 09; 18(5):708-713. View A phase 3 study of tezacaftor in combination with ivacaftor in children aged 6 through 11?years with cystic fibrosis. Abstract
Disease progression in patients with cystic fibrosis treated with ivacaftor: Data from national US and UK registries. J Cyst Fibros. 2020 01; 19(1):68-79. View Disease progression in patients with cystic fibrosis treated with ivacaftor: Data from national US and UK registries. Abstract
Chronic rhino-sinusitis treatment in children with cystic fibrosis: A cross-sectional survey of pediatric pulmonologists and otolaryngologists. Int J Pediatr Otorhinolaryngol. 2019 Sep; 124:139-142. View Chronic rhino-sinusitis treatment in children with cystic fibrosis: A cross-sectional survey of pediatric pulmonologists and otolaryngologists. Abstract
An open-label extension study of ivacaftor in children with CF and a CFTR gating mutation initiating treatment at age 2-5?years (KLIMB). J Cyst Fibros. 2019 11; 18(6):838-843. View An open-label extension study of ivacaftor in children with CF and a CFTR gating mutation initiating treatment at age 2-5?years (KLIMB). Abstract
Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement. Patient. 2019 04; 12(2):267-276. View Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement. Abstract
Linkage of the CF foundation patient registry with the pediatric health information system database. Pediatr Pulmonol. 2019 06; 54(6):721-728. View Linkage of the CF foundation patient registry with the pediatric health information system database. Abstract
Interprofessional provider educational needs and preferences regarding the provision of sexual and reproductive health care in cystic fibrosis. J Cyst Fibros. 2019 09; 18(5):671-676. View Interprofessional provider educational needs and preferences regarding the provision of sexual and reproductive health care in cystic fibrosis. Abstract
Social support is associated with fewer reported symptoms and decreased treatment burden in adults with cystic fibrosis. J Cyst Fibros. 2019 07; 18(4):572-576. View Social support is associated with fewer reported symptoms and decreased treatment burden in adults with cystic fibrosis. Abstract
Cystic Fibrosis And Ivacaftor Use: The Authors Reply. Health Aff (Millwood). 2019 02; 38(2):328. View Cystic Fibrosis And Ivacaftor Use: The Authors Reply. Abstract
Safety, pharmacokinetics, and pharmacodynamics of lumacaftor and ivacaftor combination therapy in children aged 2-5 years with cystic fibrosis homozygous for F508del-CFTR: an open-label phase 3 study. Lancet Respir Med. 2019 04; 7(4):325-335. View Safety, pharmacokinetics, and pharmacodynamics of lumacaftor and ivacaftor combination therapy in children aged 2-5 years with cystic fibrosis homozygous for F508del-CFTR: an open-label phase 3 study. Abstract
Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016. Pediatr Pulmonol. 2018 12; 53(12):1611-1618. View Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016. Abstract
Disparities in Mortality of Hispanic Patients with Cystic Fibrosis in the United States. A National and Regional Cohort Study. Am J Respir Crit Care Med. 2018 10 15; 198(8):1055-1063. View Disparities in Mortality of Hispanic Patients with Cystic Fibrosis in the United States. A National and Regional Cohort Study. Abstract
Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities. J Clin Transl Sci. 2018 Oct; 2(5):334-342. View Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities. Abstract
Rate and predictors of prescription of lumacaftor - Ivacaftor in the 18?months following approval in the United States. J Cyst Fibros. 2018 11; 17(6):742-746. View Rate and predictors of prescription of lumacaftor - Ivacaftor in the 18?months following approval in the United States. Abstract
Sexual and Reproductive Health of Young Women With Cystic Fibrosis: A Concept Mapping Study. Acad Pediatr. 2019 04; 19(3):307-314. View Sexual and Reproductive Health of Young Women With Cystic Fibrosis: A Concept Mapping Study. Abstract
The burden of cystic fibrosis in the Medicaid population. Clinicoecon Outcomes Res. 2018; 10:423-431. View The burden of cystic fibrosis in the Medicaid population. Abstract
Overcoming psychosocial challenges in cystic fibrosis: Promoting resilience. Pediatr Pulmonol. 2018 11; 53(S3):S86-S92. View Overcoming psychosocial challenges in cystic fibrosis: Promoting resilience. Abstract
Data from the US and UK cystic fibrosis registries support disease modification by CFTR modulation with ivacaftor. Thorax. 2018 08; 73(8):731-740. View Data from the US and UK cystic fibrosis registries support disease modification by CFTR modulation with ivacaftor. Abstract
Precision Medicine In Action: The Impact Of Ivacaftor On Cystic Fibrosis-Related Hospitalizations. Health Aff (Millwood). 2018 05; 37(5):773-779. View Precision Medicine In Action: The Impact Of Ivacaftor On Cystic Fibrosis-Related Hospitalizations. Abstract
Perspectives of adolescent girls with cystic fibrosis and parents on disease-specific sexual and reproductive health education. Pediatr Pulmonol. 2018 08; 53(8):1027-1034. View Perspectives of adolescent girls with cystic fibrosis and parents on disease-specific sexual and reproductive health education. Abstract
Association of High-Dose Ibuprofen Use, Lung Function Decline, and Long-Term Survival in Children with Cystic Fibrosis. Ann Am Thorac Soc. 2018 04; 15(4):485-493. View Association of High-Dose Ibuprofen Use, Lung Function Decline, and Long-Term Survival in Children with Cystic Fibrosis. Abstract
Cystic fibrosis patient registries: A valuable source for clinical research. J Cyst Fibros. 2018 07; 17(4):433-440. View Cystic fibrosis patient registries: A valuable source for clinical research. Abstract
Outcome evaluation of a pharmacy-based therapy management program for patients with cystic fibrosis. Pediatr Pulmonol. 2018 06; 53(6):720-727. View Outcome evaluation of a pharmacy-based therapy management program for patients with cystic fibrosis. Abstract
Risk Factors for Gaps in Care during Transfer from Pediatric to Adult Cystic Fibrosis Programs in the United States. Ann Am Thorac Soc. 2018 02; 15(2):234-240. View Risk Factors for Gaps in Care during Transfer from Pediatric to Adult Cystic Fibrosis Programs in the United States. Abstract
Ceftaroline pharmacokinetics and pharmacodynamics in patients with cystic fibrosis. J Cyst Fibros. 2018 05; 17(3):e25-e31. View Ceftaroline pharmacokinetics and pharmacodynamics in patients with cystic fibrosis. Abstract
Lung function decline is delayed but not decreased in patients with cystic fibrosis and the R117H gene mutation. J Cyst Fibros. 2018 07; 17(4):503-510. View Lung function decline is delayed but not decreased in patients with cystic fibrosis and the R117H gene mutation. Abstract
Sexual and reproductive health care utilization and preferences reported by young women with cystic fibrosis. J Cyst Fibros. 2018 01; 17(1):64-70. View Sexual and reproductive health care utilization and preferences reported by young women with cystic fibrosis. Abstract
Mental Health Screening of Medically-Admitted Patients With Cystic Fibrosis. Psychosomatics. 2018 Mar - Apr; 59(2):158-168. View Mental Health Screening of Medically-Admitted Patients With Cystic Fibrosis. Abstract
Incident Stenotrophomonas maltophilia infection and lung function decline in cystic fibrosis. Pediatr Pulmonol. 2017 10; 52(10):1276-1282. View Incident Stenotrophomonas maltophilia infection and lung function decline in cystic fibrosis. Abstract
Early Lung Function Decline in Cystic Fibrosis. Can Registry Data Explain Divergent Phenotypes? Am J Respir Crit Care Med. 2017 08 15; 196(4):407-409. View Early Lung Function Decline in Cystic Fibrosis. Can Registry Data Explain Divergent Phenotypes? Abstract
Pediatric lung transplantation and end of life care in cystic fibrosis: Barriers and successful strategies. Pediatr Pulmonol. 2017 Nov; 52(S48):S61-S68. View Pediatric lung transplantation and end of life care in cystic fibrosis: Barriers and successful strategies. Abstract
Sexual and reproductive health behaviors and experiences reported by young women with cystic fibrosis. J Cyst Fibros. 2018 01; 17(1):57-63. View Sexual and reproductive health behaviors and experiences reported by young women with cystic fibrosis. Abstract
Preparation for Transition to Adult Care Among Medicaid-Insured Adolescents. Pediatrics. 2017 Jul; 140(1). View Preparation for Transition to Adult Care Among Medicaid-Insured Adolescents. Abstract
Patients with Cystic Fibrosis and a G551D or Homozygous F508del Mutation: Similar Lung Function Decline. Am J Respir Crit Care Med. 2017 06 15; 195(12):1673-1676. View Patients with Cystic Fibrosis and a G551D or Homozygous F508del Mutation: Similar Lung Function Decline. Abstract
Impact of an Individual Mandate and Other Health Reforms on Dependent Coverage for Adolescents and Young Adults. Health Serv Res. 2018 06; 53(3):1581-1599. View Impact of an Individual Mandate and Other Health Reforms on Dependent Coverage for Adolescents and Young Adults. Abstract
Utilization of a patient-centered asthma passport tool in a subspecialty clinic. J Asthma. 2018 02; 55(2):180-187. View Utilization of a patient-centered asthma passport tool in a subspecialty clinic. Abstract
Microbiology of the Upper and Lower Airways in Pediatric Cystic Fibrosis Patients. Otolaryngol Head Neck Surg. 2017 08; 157(2):302-308. View Microbiology of the Upper and Lower Airways in Pediatric Cystic Fibrosis Patients. Abstract
Correlation of Transient Elastography With Severity of Cystic Fibrosis-related Liver Disease. J Pediatr Gastroenterol Nutr. 2017 04; 64(4):505-511. View Correlation of Transient Elastography With Severity of Cystic Fibrosis-related Liver Disease. Abstract
The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping. J Cyst Fibros. 2018 01; 17(1):71-77. View The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping. Abstract
Adherence and Recursive Perception Among Young Adults with Cystic Fibrosis. Anthropol Med. 2017 Apr; 24(1):65-80. View Adherence and Recursive Perception Among Young Adults with Cystic Fibrosis. Abstract
Counterpoint: Too little care or too little collaboration: Approaches to treatment refusal in CF. J Cyst Fibros. 2017 03; 16(2):304-305. View Counterpoint: Too little care or too little collaboration: Approaches to treatment refusal in CF. Abstract
Provider Attitudes and Practices toward Sexual and Reproductive Health Care for Young Women with Cystic Fibrosis. J Pediatr Adolesc Gynecol. 2017 Oct; 30(5):546-552. View Provider Attitudes and Practices toward Sexual and Reproductive Health Care for Young Women with Cystic Fibrosis. Abstract
Reply: Combining Clinical Trial and Patient Registry Data in Cystic Fibrosis: Who Should Be Compared? Am J Respir Crit Care Med. 2017 02 01; 195(3):405-406. View Reply: Combining Clinical Trial and Patient Registry Data in Cystic Fibrosis: Who Should Be Compared? Abstract
Obesity and Airway Dysanapsis in Children with and without Asthma. Am J Respir Crit Care Med. 2017 Feb 01; 195(3):314-323. View Obesity and Airway Dysanapsis in Children with and without Asthma. Abstract
Assessment of safety and efficacy of long-term treatment with combination lumacaftor and ivacaftor therapy in patients with cystic fibrosis homozygous for the F508del-CFTR mutation (PROGRESS): a phase 3, extension study. Lancet Respir Med. 2017 02; 5(2):107-118. View Assessment of safety and efficacy of long-term treatment with combination lumacaftor and ivacaftor therapy in patients with cystic fibrosis homozygous for the F508del-CFTR mutation (PROGRESS): a phase 3, extension study. Abstract
Treatment satisfaction in cystic fibrosis: early patient experience with tobramycin inhalation powder. Patient Prefer Adherence. 2016; 10:2163-2169. View Treatment satisfaction in cystic fibrosis: early patient experience with tobramycin inhalation powder. Abstract
Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis. Adolesc Health Med Ther. 2016; 7:117-124. View Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis. Abstract
Transition and transfer of childhood cancer survivors to adult care: A national survey of pediatric oncologists. Pediatr Blood Cancer. 2017 02; 64(2):346-352. View Transition and transfer of childhood cancer survivors to adult care: A national survey of pediatric oncologists. Abstract
Healthcare resource utilization associated with ivacaftor use in patients with cystic fibrosis. J Med Econ. 2016 Sep; 19(9):845-51. View Healthcare resource utilization associated with ivacaftor use in patients with cystic fibrosis. Abstract
Young adults with cystic fibrosis have altered trabecular microstructure by ITS-based morphological analysis. Osteoporos Int. 2016 08; 27(8):2497-505. View Young adults with cystic fibrosis have altered trabecular microstructure by ITS-based morphological analysis. Abstract
Safety, pharmacokinetics, and pharmacodynamics of ivacaftor in patients aged 2-5 years with cystic fibrosis and a CFTR gating mutation (KIWI): an open-label, single-arm study. Lancet Respir Med. 2016 Feb; 4(2):107-15. View Safety, pharmacokinetics, and pharmacodynamics of ivacaftor in patients aged 2-5 years with cystic fibrosis and a CFTR gating mutation (KIWI): an open-label, single-arm study. Abstract
Risk Factors for Hearing Loss in Patients with Cystic Fibrosis. J Am Acad Audiol. 2016 01; 27(1):6-12. View Risk Factors for Hearing Loss in Patients with Cystic Fibrosis. Abstract
CF RISE: Implementing a Clinic-Based Transition Program. Pediatr Allergy Immunol Pulmonol. 2015 Dec; 28(4):250-254. View CF RISE: Implementing a Clinic-Based Transition Program. Abstract
Tackling the increasing complexity of CF care. Pediatr Pulmonol. 2015 Oct; 50 Suppl 40:S74-9. View Tackling the increasing complexity of CF care. Abstract
Sustained Benefit from ivacaftor demonstrated by combining clinical trial and cystic fibrosis patient registry data. Am J Respir Crit Care Med. 2015 Oct 01; 192(7):836-42. View Sustained Benefit from ivacaftor demonstrated by combining clinical trial and cystic fibrosis patient registry data. Abstract
Early Life Growth Trajectories in Cystic Fibrosis are Associated with Pulmonary Function at Age 6 Years. J Pediatr. 2015 Nov; 167(5):1081-8.e1. View Early Life Growth Trajectories in Cystic Fibrosis are Associated with Pulmonary Function at Age 6 Years. Abstract
Development and Validation of the Adolescent Assessment of Preparation for Transition: A Novel Patient Experience Measure. J Adolesc Health. 2015 Sep; 57(3):282-7. View Development and Validation of the Adolescent Assessment of Preparation for Transition: A Novel Patient Experience Measure. Abstract
Rate of Uptake of Ivacaftor Use after U.S. Food and Drug Administration Approval among Patients Enrolled in the U.S. Cystic Fibrosis Foundation Patient Registry. Ann Am Thorac Soc. 2015 Aug; 12(8):1146-52. View Rate of Uptake of Ivacaftor Use after U.S. Food and Drug Administration Approval among Patients Enrolled in the U.S. Cystic Fibrosis Foundation Patient Registry. Abstract
A randomized controlled trial of vitamin D replacement strategies in pediatric CF patients. J Cyst Fibros. 2016 Mar; 15(2):234-41. View A randomized controlled trial of vitamin D replacement strategies in pediatric CF patients. Abstract
Self-Management and Transition Readiness Assessment: Concurrent, Predictive and Discriminant Validation of the STARx Questionnaire. J Pediatr Nurs. 2015 Sep-Oct; 30(5):668-76. View Self-Management and Transition Readiness Assessment: Concurrent, Predictive and Discriminant Validation of the STARx Questionnaire. Abstract
Predictors of timing of transfer from pediatric- to adult-focused primary care. JAMA Pediatr. 2015 Jun; 169(6):e150951. View Predictors of timing of transfer from pediatric- to adult-focused primary care. Abstract
Similar performance of Brasfield and Wisconsin scoring systems in young children with cystic fibrosis. Pediatr Radiol. 2015 Oct; 45(11):1624-8. View Similar performance of Brasfield and Wisconsin scoring systems in young children with cystic fibrosis. Abstract
Randomized trial of efficacy and safety of dornase alfa delivered by eRapid nebulizer in cystic fibrosis patients. J Cyst Fibros. 2015 Nov; 14(6):777-83. View Randomized trial of efficacy and safety of dornase alfa delivered by eRapid nebulizer in cystic fibrosis patients. Abstract
Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers. J Cyst Fibros. 2016 Jan; 15(1):90-5. View Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers. Abstract
Antibiotic treatment of signs and symptoms of pulmonary exacerbations: a comparison by care site. Pediatr Pulmonol. 2015 May; 50(5):431-40. View Antibiotic treatment of signs and symptoms of pulmonary exacerbations: a comparison by care site. Abstract
Ready, set, stop: mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents. Clin Pediatr (Phila). 2014 Oct; 53(11):1062-8. View Ready, set, stop: mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents. Abstract
The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. 2014 Jul-Aug; 14(4):415-22. View The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Abstract
Compromised bone microarchitecture and estimated bone strength in young adults with cystic fibrosis. J Clin Endocrinol Metab. 2014 Sep; 99(9):3399-407. View Compromised bone microarchitecture and estimated bone strength in young adults with cystic fibrosis. Abstract
Inter-hospital variation in the frequency of sinus surgery in children with cystic fibrosis. Pediatr Pulmonol. 2015 Mar; 50(3):231-235. View Inter-hospital variation in the frequency of sinus surgery in children with cystic fibrosis. Abstract
Motivating adherence among adolescents with cystic fibrosis: youth and parent perspectives. Pediatr Pulmonol. 2015 Feb; 50(2):127-36. View Motivating adherence among adolescents with cystic fibrosis: youth and parent perspectives. Abstract
Transition care: future directions in education, health policy, and outcomes research. Acad Pediatr. 2014 Mar-Apr; 14(2):120-7. View Transition care: future directions in education, health policy, and outcomes research. Abstract
Vitamin D status in children with cystic fibrosis. Associations with inflammation and bacterial colonization. Ann Am Thorac Soc. 2014 Feb; 11(2):205-10. View Vitamin D status in children with cystic fibrosis. Associations with inflammation and bacterial colonization. Abstract
Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective. J Pediatr Rehabil Med. 2014; 7(1):43-51. View Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective. Abstract
Brasfield and Wisconsin scoring systems have equal value as outcome assessment tools of cystic fibrosis lung disease. Pediatr Radiol. 2014 May; 44(5):529-34. View Brasfield and Wisconsin scoring systems have equal value as outcome assessment tools of cystic fibrosis lung disease. Abstract
Longitudinal trends in health-related quality of life in adults with cystic fibrosis. Chest. 2013 Sep; 144(3):981-989. View Longitudinal trends in health-related quality of life in adults with cystic fibrosis. Abstract
Claim-based analyses of inhaled corticosteroid refill rates for asthma: who's kidding whom? Ann Am Thorac Soc. 2013 Apr; 10(2):149-50. View Claim-based analyses of inhaled corticosteroid refill rates for asthma: who's kidding whom? Abstract
Treatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomes. J Cyst Fibros. 2013 Sep; 12(5):461-7. View Treatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomes. Abstract
A pulmonary exacerbation risk score among cystic fibrosis patients not receiving recommended care. Pediatr Pulmonol. 2013 Oct; 48(10):954-61. View A pulmonary exacerbation risk score among cystic fibrosis patients not receiving recommended care. Abstract
Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists. J Am Coll Cardiol. 2012 Dec 11; 60(23):2411-8. View Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists. Abstract
Managing treatment complexity in cystic fibrosis: challenges and opportunities. Pediatr Pulmonol. 2012 Jun; 47(6):523-33. View Managing treatment complexity in cystic fibrosis: challenges and opportunities. Abstract
Erratum to: Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national, US sample. Qual Life Res. 2012 Sep; 21(7):1279-90. View Erratum to: Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national, US sample. Abstract
The impact of reflux burden on Pseudomonas positivity in children with cystic fibrosis. Pediatr Pulmonol. 2012 Jun; 47(6):582-7. View The impact of reflux burden on Pseudomonas positivity in children with cystic fibrosis. Abstract
Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample. Qual Life Res. 2012 Sep; 21(7):1267-78. View Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample. Abstract
Physician practices for communicating with patients with cystic fibrosis about the use of noninvasive and invasive mechanical ventilation. Chest. 2012 Apr; 141(4):1010-1017. View Physician practices for communicating with patients with cystic fibrosis about the use of noninvasive and invasive mechanical ventilation. Abstract
Assessment of current strategies for weaning premature infants from supplemental oxygen in the outpatient setting. Adv Neonatal Care. 2011 Oct; 11(5):349-56. View Assessment of current strategies for weaning premature infants from supplemental oxygen in the outpatient setting. Abstract
Receipt of health care transition counseling in the national survey of adult transition and health. Pediatrics. 2011 Sep; 128(3):e521-9. View Receipt of health care transition counseling in the national survey of adult transition and health. Abstract
Reduced mortality in cystic fibrosis patients treated with tobramycin inhalation solution. Pediatr Pulmonol. 2012 Jan; 47(1):44-52. View Reduced mortality in cystic fibrosis patients treated with tobramycin inhalation solution. Abstract
Tree nut allergy, egg allergy, and asthma in children. Clin Pediatr (Phila). 2011 Feb; 50(2):133-9. View Tree nut allergy, egg allergy, and asthma in children. Abstract
Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis. Pediatr Pulmonol. 2011 Jan; 46(1):36-44. View Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis. Abstract
Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil. 2011; 33(11):922-6. View Employment experiences among adolescents and young adults with cystic fibrosis. Abstract
Associations between illness perceptions and health-related quality of life in adults with cystic fibrosis. J Psychosom Res. 2011 Feb; 70(2):161-7. View Associations between illness perceptions and health-related quality of life in adults with cystic fibrosis. Abstract
Uncontrolled asthma in a commercially insured population from 2002 to 2007: trends, predictors, and costs. J Asthma. 2010 Jun; 47(5):574-80. View Uncontrolled asthma in a commercially insured population from 2002 to 2007: trends, predictors, and costs. Abstract
Cystic fibrosis and transition to adult medical care. Pediatrics. 2010 Mar; 125(3):566-73. View Cystic fibrosis and transition to adult medical care. Abstract
Asthma care quality for children with minority-serving providers. Arch Pediatr Adolesc Med. 2010 Jan; 164(1):38-45. View Asthma care quality for children with minority-serving providers. Abstract
Patterns of inhaled corticosteroid use and asthma control in the Childhood Asthma Management Program Continuation Study. Ann Allergy Asthma Immunol. 2010 Jan; 104(1):30-5. View Patterns of inhaled corticosteroid use and asthma control in the Childhood Asthma Management Program Continuation Study. Abstract
Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2011 Mar; 36(2):160-71. View Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. Abstract
Travel patterns to school among children with asthma. Clin Pediatr (Phila). 2009 Jul; 48(6):632-40. View Travel patterns to school among children with asthma. Abstract
The impact of MRSA on lung function in patients with cystic fibrosis. Am J Respir Crit Care Med. 2009 Apr 15; 179(8):734-5; author reply 735. View The impact of MRSA on lung function in patients with cystic fibrosis. Abstract
The impact of incident methicillin resistant Staphylococcus aureus detection on pulmonary function in cystic fibrosis. Pediatr Pulmonol. 2008 Nov; 43(11):1117-1123. View The impact of incident methicillin resistant Staphylococcus aureus detection on pulmonary function in cystic fibrosis. Abstract
High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros. 2009 Mar; 8(2):91-6. View High treatment burden in adults with cystic fibrosis: challenges to disease self-management. Abstract
Advance care planning in adults with cystic fibrosis. J Palliat Med. 2008 Oct; 11(8):1135-41. View Advance care planning in adults with cystic fibrosis. Abstract
Necrotising pneumonia is an increasingly detected complication of pneumonia in children. Eur Respir J. 2008 Jun; 31(6):1285-91. View Necrotising pneumonia is an increasingly detected complication of pneumonia in children. Abstract
Self-reported physical and psychological symptom burden in adults with cystic fibrosis. J Pain Symptom Manage. 2008 Apr; 35(4):372-80. View Self-reported physical and psychological symptom burden in adults with cystic fibrosis. Abstract
Periodic use of inhaled steroids in children with mild persistent asthma: what are pediatricians recommending? Clin Pediatr (Phila). 2008 Jun; 47(5):446-51. View Periodic use of inhaled steroids in children with mild persistent asthma: what are pediatricians recommending? Abstract
Bronchoscopy findings in children and young adults with tracheostomy due to congenital anomalies and neurological impairment. J Pediatr Rehabil Med. 2008; 1(2):137-43. View Bronchoscopy findings in children and young adults with tracheostomy due to congenital anomalies and neurological impairment. Abstract
Mucoepidermoid carcinoma of bronchus in a pediatric patient: (18)F-FDG PET findings. Pediatr Radiol. 2007 Dec; 37(12):1278-82. View Mucoepidermoid carcinoma of bronchus in a pediatric patient: (18)F-FDG PET findings. Abstract
Self-reported involvement of family members in the care of adults with CF. J Cyst Fibros. 2008 Mar; 7(2):95-101. View Self-reported involvement of family members in the care of adults with CF. Abstract
Adults with cystic fibrosis report important and unmet needs for disease information. J Cyst Fibros. 2007 Nov 30; 6(6):411-6. View Adults with cystic fibrosis report important and unmet needs for disease information. Abstract
Phenotypic and cytokine analysis of human peripheral blood gamma delta T cells expressing NK cell receptors. J Immunol. 1997 Oct 15; 159(8):3723-30. View Phenotypic and cytokine analysis of human peripheral blood gamma delta T cells expressing NK cell receptors. Abstract