Current Environment: Production

Medical Services

Programs & Services

Languages

  • English

Education

Medical School

Harvard Medical School

1998, Boston, MA

Internship

Pediatrics

Harvard Medical School

1999, Boston, MA

Residency

Pediatrics

Boston Children's Hospital/Boston Medical Center

2001, Boston, MA

Fellowship

Pediatric Hematology-Oncology & Pediatric Palliative Care

Boston Children's Hospital/Dana Farber Cancer Institute

2004, Boston, MA

Certifications

  • American Board of Pediatrics (Hematology-Oncology)

Publications

  1. "What's a Win": A Qualitative Study Exploring Surgeon Perspectives on Operative Intent in Non-curative Cancer Surgery. Ann Surg. 2025 May 22. View Abstract

  2. Timing and Outcomes of Palliative Care Integration Into Care of Adolescents and Young Adults With Advanced Cancer. JCO Oncol Pract. 2025 May 13; OP2400907. View Abstract

  3. Spiritual Communication Between Pediatric Oncologists, Caregivers, and Patients With Brain Tumors. Pediatr Blood Cancer. 2025 Jul; 72(7):e31721. View Abstract

  4. "We Were Still Left in the Back Field, Not Knowing": Pediatric Cancer Patients and Parents Describe Obstacles to Prognostic Communication. Cancer Med. 2025 Apr; 14(7):e70810. View Abstract

  5. Preferences for Communication About Prognosis Among Children With Cancer, Parents, and Oncologists. JAMA Netw Open. 2025 Apr 01; 8(4):e255431. View Abstract

  6. Help Navigate the Process: Early Information and Communication About Late Effects of Pediatric and Adolescent Cancer. JCO Oncol Pract. 2025 Mar 20; OP2400841. View Abstract

  7. Preferred and Actual Location of Death in Adolescents and Young Adults With Cancer. JAMA Netw Open. 2025 Jan 02; 8(1):e2454000. View Abstract

  8. Evolution in Documented Goals of Care at End of Life for Adolescents and Younger Adults With Cancer. JAMA Netw Open. 2024 Dec 02; 7(12):e2450489. View Abstract

  9. Definition of Palliative Surgery in Cancer Care: A Systematic Review. J Surg Oncol. 2024 11 28. View Abstract

  10. Applying theories, models, and frameworks to help genetic counselors and students achieve clinical and professional goals. J Genet Couns. 2025 Apr; 34(2):e1988. View Abstract

  11. Explanatory models in real-world clinical interactions at a pediatric cancer center in Guatemala. PLOS Glob Public Health. 2024; 4(10):e0003813. View Abstract

  12. Peace, equanimity and acceptance in the cancer experience: validation of the German version (PEACE-G) and associations with mental health, health-related quality of life and psychological constructs. BMC Psychol. 2024 Sep 27; 12(1):507. View Abstract

  13. Functions of patient- and family-centered pediatric cancer communication in Pakistan. Front Oncol. 2024; 14:1393908. View Abstract

  14. Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer. JCO Oncol Pract. 2025 Apr; 21(4):552-560. View Abstract

  15. Preferred and Actual Places of Death Among Patients with Advanced Cancer: A Single-centre Cohort Study in Japan. Indian J Palliat Care. 2024 Jul-Sep; 30(3):268-274. View Abstract

  16. Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality. J Clin Oncol. 2024 Dec; 42(34):4018-4022. View Abstract

  17. Language to Support Dignity for Children With Advanced Cancer and Their Families. Pediatrics. 2024 Aug 01; 154(2). View Abstract

  18. Parent-provider communication dynamics during the pediatric oncology diagnostic process in Guatemala: A qualitative study. Pediatr Blood Cancer. 2024 Oct; 71(10):e31227. View Abstract

  19. Use of cancer-directed therapy at the end of life among adolescents and young adults. J Natl Cancer Inst. 2024 Jul 01; 116(7):1080-1086. View Abstract

  20. "A very difficult conversation": Challenges and opportunities for improvement in pediatric oncology clinician communication about late effects. Pediatr Blood Cancer. 2024 Aug; 71(8):e31093. View Abstract

  21. Stigma in Pediatric Cancer: An Exploratory Study of Osteosarcoma and Retinoblastoma in Guatemala, Jordan, and Zimbabwe. JCO Glob Oncol. 2024 Jun; 10:e2400017. View Abstract

  22. Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls. Support Care Cancer. 2024 May 13; 32(6):341. View Abstract

  23. Psychosocial and supportive care concerns of young women living with advanced breast cancer: baseline findings from a prospective virtual support intervention study. Support Care Cancer. 2024 May 10; 32(6):336. View Abstract

  24. Who gets to die at home? Race and disease-related cause of death impacts young adults' place of death. Evid Based Nurs. 2024 Mar 28; 27(2):79. View Abstract

  25. Ethical Tensions in the Role of the Medical Interpreter. Narrat Inq Bioeth. 2024; 14(3):189-193. View Abstract

  26. Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey study. Cancer. 2024 04 01; 130(7):1101-1111. View Abstract

  27. What Constitutes Quality of Life? Perspectives of Adolescents and Young Adults With Advanced Cancer. J Natl Compr Canc Netw. 2023 12; 21(12):1243-1250. View Abstract

  28. Quality of End-of-Life Care Among Adolescents and Young Adults With Cancer. J Clin Oncol. 2024 Feb 20; 42(6):621-629. View Abstract

  29. A helping hand: The impact of a central line insertion support team. Am J Infect Control. 2023 12; 51(12):1438-1440. View Abstract

  30. Agreement and disagreement between child-caregiver symptom and function reports in pediatric oncology. Pediatr Blood Cancer. 2024 Jan; 71(1):e30710. View Abstract

  31. CritCom: assessment of quality of interdisciplinary communication around deterioration in pediatric oncologic patients. Front Oncol. 2023; 13:1207578. View Abstract

  32. Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures. Pediatr Blood Cancer. 2023 Dec; 70(12):e30685. View Abstract

  33. Oncology Clinicians' Perspectives on Online Patient Portal Use in Pediatric and Adolescent Cancer. JCO Clin Cancer Inform. 2023 09; 7:e2300124. View Abstract

  34. Barriers and Facilitators of Quality Family-Centered Communication in Pakistan. JCO Glob Oncol. 2023 Sep; 9:e2300178. View Abstract

  35. Discussions About Goals of Care and Advance Care Planning Among Adolescents and Young Adults With Cancer Approaching the End of Life. J Clin Oncol. 2023 10 20; 41(30):4739-4746. View Abstract

  36. Patient, Caregiver, and Clinician Perspectives on Core Components of Therapeutic Alliance for Adolescents and Young Adults With Advanced Cancer: A Qualitative Study. JAMA Netw Open. 2023 08 01; 6(8):e2328153. View Abstract

  37. Impact of the COVID-19 pandemic on pediatric faculty: a report from nine academic institutions. Pediatr Res. 2024 Feb; 95(3):775-784. View Abstract

  38. Identifying contributors to disparities in patient access of online medical records: examining the role of clinician encouragement. JAMIA Open. 2023 Oct; 6(3):ooad049. View Abstract

  39. A new measure for multi-professional medical team communication: design and methodology for multilingual measurement development. Front Pediatr. 2023; 11:1127633. View Abstract

  40. A single-institution pediatric and young adult interventional oncology collaborative: Novel therapeutic options for relapsed/refractory solid tumors. Cancer Med. 2023 06; 12(12):13300-13308. View Abstract

  41. Prognostic awareness in Japanese patients with advanced cancer: a follow-up cohort study. Jpn J Clin Oncol. 2023 Apr 29; 53(5):410-418. View Abstract

  42. A multi-disciplinary team approach to pediatric malignant mandibular tumors. Int J Pediatr Otorhinolaryngol. 2023 May; 168:111547. View Abstract

  43. Application of Instrumental Variable Analysis in Pediatric End-of-Life Research: A Case Study. West J Nurs Res. 2023 06; 45(6):571-580. View Abstract

  44. Quality Indicators for Adolescents and Young Adults With Advanced Cancer: A Modified Delphi Process With Patients, Family Members, and Clinicians. J Pain Symptom Manage. 2023 07; 66(1):54-61. View Abstract

  45. Understanding hope at diagnosis: A study among Guatemalan parents of children with cancer. Cancer Med. 2023 04; 12(8):9966-9975. View Abstract

  46. The Day One Talk, 20 Years Later: What Have We Learned? JCO Oncol Pract. 2023 04; 19(4):164-166. View Abstract

  47. Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean. Pediatr Blood Cancer. 2023 05; 70(5):e30244. View Abstract

  48. "There's no playbook for when your kid has cancer": Desired elements of an electronic resource to support pediatric cancer communication. Pediatr Blood Cancer. 2023 03; 70(3):e30198. View Abstract

  49. Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer. Children (Basel). 2022 Dec 21; 10(1). View Abstract

  50. Profiles of Symptom Suffering and Functioning in Children and Adolescents Receiving Chemotherapy. Cancer Nurs. 2023 Mar-Apr 01; 46(2):E129-E137. View Abstract

  51. Evaluating the cost-effectiveness of pediatric concurrent versus standard hospice care. Nurs Econ. 2022 Nov-Dec; 40(6):297-304. View Abstract

  52. Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study. BMC Cancer. 2022 Oct 31; 22(1):1109. View Abstract

  53. "The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer. Pediatr Blood Cancer. 2023 01; 70(1):e30035. View Abstract

  54. Conceptualizing the Value of Pediatric Concurrent Hospice Care. J Hosp Palliat Nurs. 2023 02 01; 25(1):31-38. View Abstract

  55. Capturing the young child's reports of cancer treatment tolerability: Does our practice reflect an assumption that they cannot report? Pediatr Blood Cancer. 2023 01; 70(1):e30028. View Abstract

  56. Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events. Pediatr Blood Cancer. 2022 12; 69(12):e29986. View Abstract

  57. "Seed Planting" As an Approach for Longitudinal Prognostic Disclosure in Pediatric Cancer: A Case Series. J Palliat Med. 2023 03; 26(3):447-451. View Abstract

  58. Development and Adaptation of a Patient-Centered Communication Survey for Parents of Children With Cancer in Guatemala. JCO Glob Oncol. 2022 09; 8:e2200124. View Abstract

  59. Change in the Parent-Clinician Relationship Throughout the First Year of Treatment in Pediatric Oncology. JAMA Netw Open. 2022 09 01; 5(9):e2230503. View Abstract

  60. Navigating prognostic communication when children with poor-prognosis cancer experience prolonged disease stability. Pediatr Blood Cancer. 2023 01; 70(1):e29920. View Abstract

  61. Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer. JCO Oncol Pract. 2022 10; 18(10):e1621-e1629. View Abstract

  62. Mismatch between Pediatric Oncologists' Private and Parent-Facing Prognostic Communication: Communication Patterns Used to Soften Prognostic Disclosure. J Palliat Med. 2023 02; 26(2):210-219. View Abstract

  63. Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study. BMJ Open. 2022 08 11; 12(8):e057350. View Abstract

  64. Validity and reliability of the Japanese version of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire. Palliat Support Care. 2022 08; 20(4):549-555. View Abstract

  65. Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer. PLoS One. 2022; 17(7):e0270797. View Abstract

  66. Silence in Conversations About Advancing Pediatric Cancer. Front Oncol. 2022; 12:894586. View Abstract

  67. Co-management of communication and care in adolescent and young adult oncology. Pediatr Blood Cancer. 2022 10; 69(10):e29813. View Abstract

  68. The Art of Saying Nothing. Pediatrics. 2022 Jun 01; 149(6). View Abstract

  69. Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients. J Adolesc Young Adult Oncol. 2023 04; 12(2):151-158. View Abstract

  70. Pediatric Concurrent Hospice Care: Cost Implications of a Hybrid Payment Model. Am J Hosp Palliat Care. 2022 Dec; 39(12):1436-1442. View Abstract

  71. A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA Health Forum. 2022 04; 3(4). View Abstract

  72. Lack of Concordance in Symptomatic Adverse Event Reporting by Children, Clinicians, and Caregivers: Implications for Cancer Clinical Trials. J Clin Oncol. 2022 05 20; 40(15):1623-1634. View Abstract

  73. Patterns of Healthcare Services Among Children With Advanced Cancer in Concurrent Hospice Care. Cancer Nurs. 2022 Nov-Dec 01; 45(6):E843-E848. View Abstract

  74. A National Study to Compare Effective Management of Constipation in Children Receiving Concurrent Versus Standard Hospice Care. J Hosp Palliat Nurs. 2022 02 01; 24(1):70-77. View Abstract

  75. Interdependent functions of communication with adolescents and young adults in oncology. Pediatr Blood Cancer. 2022 04; 69(4):e29588. View Abstract

  76. Health Literacy and Clinical Outcomes Following Hematopoietic Stem-Cell Transplantation. JCO Oncol Pract. 2022 06; 18(6):e857-e868. View Abstract

  77. Missing Voices: Lessons Learned from Nonparticipating Caregivers in Palliative Care Research. J Palliat Med. 2022 03; 25(3):455-460. View Abstract

  78. Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Educ Couns. 2022 07; 105(7):2067-2073. View Abstract

  79. Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 10; 11(5):498-505. View Abstract

  80. Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care. Am J Hosp Palliat Care. 2022 Oct; 39(10):1129-1136. View Abstract

  81. Early parental knowledge of late effect risks in children with cancer. Pediatr Blood Cancer. 2022 02; 69(2):e29473. View Abstract

  82. Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait. J Assist Reprod Genet. 2022 Jan; 39(1):183-193. View Abstract

  83. Parent and Clinician Perspectives on Challenging Parent-Clinician Relationships in Pediatric Oncology. JAMA Netw Open. 2021 11 01; 4(11):e2132138. View Abstract

  84. Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review. Pediatr Blood Cancer. 2022 01; 69(1):e29405. View Abstract

  85. Thinking ahead: Parents' worries about late effects of childhood cancer treatment. Pediatr Blood Cancer. 2021 12; 68(12):e29335. View Abstract

  86. Communication Priorities and Experiences of Caregivers of Children With Cancer in Guatemala. JCO Glob Oncol. 2021 09; 7:1529-1536. View Abstract

  87. Broaching goals-of-care conversations in advancing pediatric cancer. Pediatr Blood Cancer. 2021 10; 68(10):e29270. View Abstract

  88. Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2121888. View Abstract

  89. Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2120925. View Abstract

  90. Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families. Br J Cancer. 2021 10; 125(8):1089-1099. View Abstract

  91. Who is coordinating pediatric concurrent hospice care? J Pain Symptom Manage. 2021 Nov; 62(5):e1-e4. View Abstract

  92. A Reliability Generalization Meta-Analysis of 17 Patient-Reported Outcome Measures for Positive Psychosocial Constructs in Children, Adolescents, and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 04; 11(2):163-172. View Abstract

  93. Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology. J Palliat Med. 2021 09; 24(10):1545-1549. View Abstract

  94. Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials. Cancer. 2021 10 01; 127(19):3664-3670. View Abstract

  95. Factors related to specialized palliative care use and aggressive care at end of life in Japanese patients with advanced solid cancers: a cohort study. Support Care Cancer. 2021 Dec; 29(12):7805-7813. View Abstract

  96. A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013. J Hosp Palliat Nurs. 2021 06 01; 23(3):214-220. View Abstract

  97. Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatr Blood Cancer. 2021 09; 68(9):e29106. View Abstract

  98. Evaluation of Patient-Reported Outcome Measures of Positive Psychosocial Constructs in Children and Adolescent/Young Adults with Cancer: A Systematic Review of Measurement Properties. J Adolesc Young Adult Oncol. 2022 02; 11(1):78-94. View Abstract

  99. Conflicting goals and obligations: Tensions affecting communication in pediatric oncology. Patient Educ Couns. 2022 01; 105(1):56-61. View Abstract

  100. Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer. Pediatrics. 2021 06; 147(6). View Abstract

  101. The evolution of parents' beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala. BMJ Glob Health. 2021 05; 6(5). View Abstract

  102. "What Matters to Me": What pediatric stem cell transplant patients want their providers to know. J Psychosoc Oncol. 2021; 39(4):586-593. View Abstract

  103. "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer. Pediatr Blood Cancer. 2021 08; 68(8):e29052. View Abstract

  104. Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology. JCO Oncol Pract. 2021 06; 17(6):e859-e871. View Abstract

  105. Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013. J Spec Pediatr Nurs. 2021 10; 26(4):e12333. View Abstract

  106. Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer. J Palliat Care. 2022 Apr; 37(2):87-92. View Abstract

  107. Multilevel barriers to communication in pediatric oncology: Clinicians' perspectives. Cancer. 2021 06 15; 127(12):2130-2138. View Abstract

  108. Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives. J Natl Compr Canc Netw. 2021 May; 19(5):528-533. View Abstract

  109. Parental views on communication between children and clinicians in pediatric oncology: a qualitative study. Support Care Cancer. 2021 Sep; 29(9):4957-4968. View Abstract

  110. Patients' understanding of communication about palliative care and health condition in Japanese patients with unresectable or recurrent cancer: a cross-sectional survey. Ann Palliat Med. 2021 Mar; 10(3):2650-2661. View Abstract

  111. Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review. J Adolesc Young Adult Oncol. 2021 06; 10(3):247-259. View Abstract

  112. Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. Cancer. 2021 05 01; 127(9):1483-1494. View Abstract

  113. Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean. Cancer. 2021 07 15; 127(14):2579-2586. View Abstract

  114. Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment. JAMA Pediatr. 2020 11 01; 174(11):e202861. View Abstract

  115. Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events. J Natl Cancer Inst. 2020 11 01; 112(11):1143-1152. View Abstract

  116. Alveolar rhabdomyosarcoma presenting as a pleural effusion: An atypical presentation of a malignancy. Pediatr Pulmonol. 2020 12; 55(12):3231-3233. View Abstract

  117. Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? J Pain Symptom Manage. 2021 06; 61(6):1188-1195.e2. View Abstract

  118. Characteristics of uncertainty in advanced pediatric cancer conversations. Patient Educ Couns. 2021 05; 104(5):1066-1074. View Abstract

  119. Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children. Health Aff (Millwood). 2020 10; 39(10):1770-1775. View Abstract

  120. Pediatric cancer communication in low- and middle-income countries: A scoping review. Cancer. 2020 12 01; 126(23):5030-5039. View Abstract

  121. Communication in Pediatric Oncology: A Qualitative Study. Pediatrics. 2020 09; 146(3). View Abstract

  122. Care experiences that foster trust between parents and physicians of children with cancer. Pediatr Blood Cancer. 2020 11; 67(11):e28399. View Abstract

  123. Exercise and Well-being in Adult Survivors of Childhood Cancer-Time for Interventions. JAMA Oncol. 2020 08 01; 6(8):1170-1171. View Abstract

  124. Role of Surgery in Rhabdomyosarcoma of the Head and Neck in Children. Laryngoscope. 2021 03; 131(3):E984-E992. View Abstract

  125. The use of interval-compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor. Pediatr Blood Cancer. 2020 10; 67(10):e28559. View Abstract

  126. Impact of cancer on school, work, and financial independence among adolescents and young adults. Cancer. 2020 10 01; 126(19):4400-4406. View Abstract

  127. Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources. JCO Glob Oncol. 2020 07; 6:1079-1086. View Abstract

  128. Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research. J Hosp Palliat Nurs. 2020 06; 22(3):238-245. View Abstract

  129. Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer. 2020 07 15; 126(14):3281-3288. View Abstract

  130. Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer. J Pain Symptom Manage. 2020 10; 60(4):782-789. View Abstract

  131. Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 05; 145(5). View Abstract

  132. Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res. 2020 Sep; 29(9):2425-2434. View Abstract

  133. Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer. 2020 05; 67(5):e28249. View Abstract

  134. Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med. 2020 03; 23(3):310-311. View Abstract

  135. Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2020 10; 9(5):608-612. View Abstract

  136. Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer. 2020 05; 67(5):e28192. View Abstract

  137. Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer. 2020 04; 67(4):e28160. View Abstract

  138. On listening. Cancer. 2020 01 01; 126(9):1828-1831. View Abstract

  139. Peace of mind among adolescents and young adults with cancer. Psychooncology. 2020 03; 29(3):572-578. View Abstract

  140. Communication during childhood cancer: Systematic review of patient perspectives. Cancer. 2020 02 15; 126(4):701-716. View Abstract

  141. End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020 02 15; 126(4):886-893. View Abstract

  142. Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage. 2020 04; 59(4):808-817.e2. View Abstract

  143. Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer. 2020 02; 67(2):e27993. View Abstract

  144. Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer. 2020 01 15; 126(2):416-424. View Abstract

  145. Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer. 2020 01 15; 126(2):400-407. View Abstract

  146. Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer. 2020 01 01; 126(1):140-147. View Abstract

  147. Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS One. 2019; 14(8):e0221536. View Abstract

  148. Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med. 2020 02; 23(2):192-197. View Abstract

  149. Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns. 2019 12; 102(12):2344-2348. View Abstract

  150. Recovery of offline and online sentence processing in aphasia: Language and domain-general network neuroplasticity. Cortex. 2019 11; 120:394-418. View Abstract

  151. The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer. 2020 Mar; 28(3):1215-1222. View Abstract

  152. Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer. 2019 09; 66(9):e27883. View Abstract

  153. Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book. 2019 Jan; 39:573-581. View Abstract

  154. Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics. 2019 05; 143(5). View Abstract

  155. How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med. 2019 06; 22(6):677-684. View Abstract

  156. The genomic history of the Iberian Peninsula over the past 8000 years. Science. 2019 03 15; 363(6432):1230-1234. View Abstract

  157. Mucoepidermoid carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 May; 120:93-99. View Abstract

  158. Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer. 2019 Apr; 27(4):1319-1324. View Abstract

  159. Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol. 2019; 3. View Abstract

  160. Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer. 2019 05; 66(5):e27609. View Abstract

  161. Decisional burden among parents of children with cancer. Cancer. 2019 04 15; 125(8):1365-1372. View Abstract

  162. Squamous cell carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 Feb; 117:131-137. View Abstract

  163. Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol. 2018 Oct 01; 48(10):913-919. View Abstract

  164. Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. 2018 12 01; 124(23):4529-4537. View Abstract

  165. The PRISM intervention for adolescents and young adults with cancer: Paying attention to the patient as a whole person. Cancer. 2018 10 01; 124(19):3802-3805. View Abstract

  166. Pediatric vincristine-related vocal fold paralysis. Int J Pediatr Otorhinolaryngol. 2018 11; 114:166-169. View Abstract

  167. Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs. 2018 08; 34(3):294-302. View Abstract

  168. How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics. 2018 08 01; 20(8):E757-765. View Abstract

  169. Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol. 2018 06 20; 36(18):1861-1867. View Abstract

  170. Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer. 2018 07; 65(7):e27020. View Abstract

  171. Reply to: Comment on: Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 07; 65(7):e27049. View Abstract

  172. Reply to Cross-cultural communication in pediatric oncology: Catch them when they're young. Cancer. 2018 04 01; 124(7):1517. View Abstract

  173. Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 06; 65(6):e26978. View Abstract

  174. Sources of parental hope in pediatric oncology. Pediatr Blood Cancer. 2018 06; 65(6):e26981. View Abstract

  175. Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer. 2018 03 15; 124(6):1232-1241. View Abstract

  176. Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 04; 65(4). View Abstract

  177. How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics. 2018 01; 141(1). View Abstract

  178. Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res. 2018 02; 27(2):291-319. View Abstract

  179. Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer. 2017 Oct 15; 123(20):3995-4003. View Abstract

  180. A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med. 2017 09 01; 177(9):1361-1366. View Abstract

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