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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Today it's been 5 years since my son Matthew's A.V. Canal repair. I remember the nurses: Shannon, Jaime, and Patrick....They were so good with Matthew and with my husband and I.
If it wasn't for Children's Hospital and the Cardiac wing he wouldn't be here. Thank you all for what you have done for us and giving him a chance to grow in front of our eyes! Thank you Dr. Mah, Dr. Baird, and Dr. de Ferranti we owe you the world.
5 years ago today, I placed my one week old son in Dr. Emani's hands to repair his COA. I remember it like it was yesterday, and I'm thankful every day for the care we received at the Heart Center at Boston Children's Hospital.
1 year ago today Dr Baird performed open heart surgery on Cayman. It did NOT slow him down. Today his heart is as good as new and he barely even has a scar. Thank you Dr Baird and everyone on the cardiac floor at Boston Children's Hospital.
Two years ago today we were at Boston Children's Hospital and our daughter, Emily, was having an aortic stent placed. We were told it would have to be replaced by the time she turned 2 (which was last June) but its still in place and working beautifully. We thank God every day for the amazing work of Dr. Gerald Marx and Dr. James Lock.
This weekend we celebrated our beautiful daughter, Mikayla's 1st birthday and that’s thanks to the amazing surgeons and staff on the 8th floor!! Mikayla was born with a rare diagnosis of Pentalogy of Cantrell which included several heart defects.
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Pulmonary vein stenosis is a rare and serious condition in which there is an obstruction (blockage) in the blood vessels that bring oxygen-rich blood from the lungs back to the heart. It can be isolated to a single pulmonary vein, but most often occurs in multiple veins simultaneously.
The stenosis occurs due to an abnormal thickening and, thus, narrowing of the walls of the veins. Pulmonary vein stenosis frequently progresses. As a result, partial loss or even total obstruction of flow to a vessel or vessels may occur.
Surgery to widen the narrowed veins and catheterization to stretch the vessel are usually short-term solutions since the obstruction typically recurs within a month to six weeks.
The Pulmonary Vein Stenosis team at Boston Children’s - part of the #1 ranked Heart Center - coordinates all aspects of care for children with the condition. Because pulmonary vein stenosis is so rare, it’s important that you see a team of specialists who exclusively focus on treating children with this complex condition. Please contact us today for a consultation or second opinion.
We offer treatment for newly diagnosed patients as well as innovative therapies for children with relapsed pulmonary vein stenosis.
Our specialists are known for treating children with the most complex cases as well as for our expertise in delivering specialized treatments. We often integrate care from other cardiac and pediatric specialties at Boston Children’s Hospital into your child’s treatment plan.
Your child’s care team will be led by a pediatric cardiologist and pediatric cardiac nurse practitioner who specialize in treating children with pulmonary vein stenosis.
Our team is constantly looking at new and better ways to treat pulmonary vein stenosis, including the innovative use of chemotherapy drugs.
Our team works directly with our cardiac surgeons and cardiac catheterization specialists when surgery or balloon dilation (to open the narrowed blood vessel) and/or stenting (using wire tube to prop open the vein) is necessary.
At Boston Children's Hospital, we’re fortunate to have a team of cardiac specialists who have been caring for children with pulmonary vein stenosis and have been studying the disease for decades.
Your child’s care team will include:
At Boston Children's Hospital, we consider you and your child to be integral parts of the care team and not simply recipients of care. You and your team will work together to customize a plan of care for your child.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”