Conditions + Treatments

Rett Syndrome

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Contact the Rett Syndrome Program

What is Rett syndrome?

Rett syndrome is a genetic disorder that causes a loss of spoken language and motor skills, as well as behavioral and neurological problems. Children with Rett syndrome may also have a variety of other medical problems, including intestinal, breathing, orthopedic and heart complications.

Children with Rett syndrome often have normal development during the first 6 to 18 months of life. After this time, they have a period of regression (loss of skills) and they may lose speech and other developmental milestones. The symptoms can range from mild to severe. Almost all children with Rett syndrome are female.

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Care for Rett syndrome

The Boston Children’s Hospital Rett Syndrome Program is dedicated to helping children and adults who have Rett syndrome. We bring together a team of physicians and therapists from various fields who have expertise in Rett syndrome. Our team will work with your child and family to choose the best combination of therapies and medication to manage your child’s symptoms.

Make an appointment

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- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337

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