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There are many ways you can help children and their families get the care they need.
Your child's physician will discuss specific treatment options with you, and treatment depends on whether the condition occurs in the hand or the foot.
Your doctor's goal will be to give your child optimal function of the affected area.
• A hand can still be quite functional with a finger or two larger than the rest.
• Even a slightly enlarged toe may make wearing shoes impossible.
In mild cases, treatment for macrodactyly may involve observation or, in the case of an enlarged foot, shoe modification alone.
Most of the time, however, surgery is required to correct macrodactyly. The surgery is complex because it involves multiple layers of tissue. It may take several surgical procedures to achieve the desired result.
Size-altering surgery will involve extensive observation and planning, because doctors will want to plot the rate of growth of your child's normal digits versus the enlarged digits.
Your child's doctor may recommend some combination of the following surgical procedures:
To help correct width, this procedure involves the surgical removal of the thickened layers of skin and fat and the replacement of skin with skin grafts harvested from healthy skin in a nearby area. This procedure is usually performed in several stages around three months apart.
It's more often used to treat the milder forms of macrodactyly or as a part of the treatment of the more progressive forms.
To help correct length, shortening procedures usually involve either surgical removal of one of the phalanges of the finger or toe, or removal of a metacarpal (hand bone) or metatarsal (foot bone).
Surgical removal of the entire digit or digits is sometimes necessary, particularly when the condition is progressive. It is also an option if there is excessive widening of the forefoot, where the digital shortening and debulking procedures may not be effective.
The long-term outlook for a child treated for macrodactyly varies from child to child, depending on how severe his problem is.
You and your child can expect an overall improvement in appearance and function. However, it's rare that a child's affected digits look and move perfectly.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”