Hemophilia is an inherited bleeding disorder in which the blood does not clot normally due to a lack of clotting protein. Children with hemophilia do not bleed faster than other children, but they bleed for a longer time because their blood clots more slowly.

  • Hemophilia is usually passed from parents to children through genes, but about one-third of individuals with hemophilia have no family history of the disease and their hemophilia is due to a new genetic mutation.
  • Approximately one out of every 5,000 boys born has hemophilia.
  • Hemophilia affects all races equally.
  • People with hemophilia A have absent or low levels of clotting factor VIII (8).
  • People with hemophilia B have absent or low levels of clotting factor IX (9).
  • Hemophilia can be mild, moderate or severe, depending on the level of clotting protein in the blood.
  • There are many available hemophilia treatment options to help prevent complications associated with excessive bleeding.

How Boston Children's Hospital approaches hemophilia

We treat our patients who have hemophilia at the Boston Hemophilia Center, a federally-funded joint program between Boston Children’s Hospital and Brigham and Women's Physicians Organization. The Boston Hemophilia Center is the largest hemophilia treatment program in New England.

  • Our comprehensive care model ensures that every aspect of your child's health is monitored by experienced pediatric caregivers.
  • Our goal is to enable children with hemophilia and their families to manage the illness as independently as possible and therefore lead more normal, healthy lives.

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