Conditions + Treatments

Treatments for Desmoid Tumor in Children

LIke ThisLIke ThisLIke ThisLIke ThisLIke This

Contact the Bone and Soft Tissue Tumor Program

  • 617-355-6021
  • International: +1-617-355-5209
  • Locations

What's the treatment for a Desmoid tumor?

Treatment depends on the extent of the problem and your child's overall health and medical history.

Treatment your doctor recommends may include:

  • Surgery - Surgical removal of your child's tumor by a surgeon is the primary treatment; and because Desmoid tumor rarely metastasizes, surgery alone is often the only treatment. However, Desmoid tumors often return, so sometimes more than one surgery is needed.
  • Anti-inflammatory medication - Given to help manage pain and swelling. In some cases these medications will cause the tumor to slowly shrink.
  • Radiation therapy - Using high-energy rays (radiation) from a specialized machine to damage or kill cancer cells and shrink tumors; radiation is used alone or in conjunction with surgery.
  • Hormone therapy - Because some hormones seem to increase the growth of Desmoid tumors, anti-hormonal medications are sometimes used in treatment.
  • Chemotherapy - If surgeons are unable to remove your child's tumor because of the size or location, researchers are testing some types of chemotherapy to reduce the tumor

What is the recommended long-term care for children treated for Desmoid tumors?

Children should visit a survivorship clinic every year to:

  • manage disease complications
  • screen for early recurrence of cancer
  • manage late effects of

A typical follow-up visit may include some or all of the following:

  • a physical exam
  • laboratory testing
  • imaging

Through the David B. Perini, Jr. Quality of Life Clinic at Dana-Farber Cancer Institute, childhood cancer survivors receive a comprehensive follow-up evaluation from their cancer care team.

  • Our childhood cancer survivorship clinic is held weekly.
  • In addition to meeting with your pediatric oncologists, your child may see one of our endocrinologists, cardiologists, neurologists, neuro-psychologists or alternative/complementary therapy specialists.

       We also offer the following services:

  • patient and family education
  • psychosocial assessment
  • genetic counseling
  • reproductive and fertility evaluation and counseling
  • opportunities to speak with other childhood cancer survivors
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

Close