Treatments for Diabetes Insipidus in Children

The doctors and care team at Boston Children's Hospital specialize in family-centered care, which means that from your first visit, you¹ll work with a team of professionals who are committed to supporting all of your family's needs. 

How does Boston Children's treat diabetes insipidus?
It depends upon what's causing the condition. For example, if your child's diabetes insipidus is being caused by trauma from surgery, the condition might be temporary. We'll monitor your child and keep him well hydrated until he gets better.

Permanent central diabetes insipidus is treated with medication, while treatment for nephrogenic diabetes insipidus is more complex and usually requires both medication and changes to your child's lifestyle. 

Central diabetes insipidus

Central diabetes insipidus can be effectively treated with a medication called desmopressin (DDAVP).

  • Your child will take DDAVP twice a day, which should control his diabetes insipidus and allow him to lead a healthy, active life. 

Nephrogenic diabetes insipidus

Nephrogrenic diabetes insipidus is not as easy to treat, but children with the condition can still lead relatively normal lives if they follow some simple rules:

  • Drink enough fluids to compensate for the excessive urinary output caused by the condition.
  • Eat a diet low in salt, which can help with water retention.

Sometimes, other medications can be used to help control the condition, but this is something your physician will discuss in detail with you. 

Will my child have follow-up appointments after treatment?
Children with nephrogenic diabetes insipidus will visit an endocrinologist regularly for the rest of his life so his condition can be monitored.

What makes Boston Children's treatment of diabetes insipidus different?
The endocrinologists in Boston Children's General Endocrinology Program have a lot of experience diagnosing and treating this relatively rare condition.

As one of the largest pediatric endocrinology programs in the world, we have 35 doctors who see more than 7,000 patients in 22,000 visits every year. We see many children with temporary or permanent diabetes insipidus brought on by brain surgery—and we know how to teach patients and their families how to manage their condition and live healthy lives.

Coping and support 

Boston Children's Hospital has many resources available for your whole family.