Conditions + Treatments

Desmoid Tumor in Children

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Contact the Bone and Soft Tissue Tumor Program

  • 617-355-6021
  • International: +1-617-355-5209
  • Locations

A Desmoid tumor develops in the fibrous tissue that forms tendons and ligaments.

  • most often it occurs in the arms, legs or midsection
  • it can also occur in the head and neck
  • desmoid tumor is also called "aggressive fibromatosis"
  • is benign and does not spread to other parts of the body
  • can adhere to and intertwine with surrounding structures and organs, which makes it difficult to control

Research on Desmoid tumors

Dana-Farber/Boston Children’s Cancer and Blood Disorders Center researchers are conducting numerous research studies that will help clinicians better understand and treat Desmoid tumors. Types of treatment currently being studied include:

  • Angiogenesis inhibitors - These substances may be able to prevent the growth of tumors by blocking the formation of new blood vessels that feed the tumors.
  • Chemotherapy agents - Researchers are testing which chemotherapy drugs, or combination of drugs, are most effective in treating Desmoid tumors.
Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337