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There are many ways you can help children and their families get the care they need.
At Boston Children's Hospital, we know how difficult a diagnosis of HIV can be for your whole family. That's why our physicians are focused on family-centered care:
As with many other conditions, early detection of HIV offers more options for treatment. Today, there are medical treatments that can slow down the rate at which HIV weakens the immune system, but currently, there is no cure for the disease. However, there are other treatments that can prevent or cure the conditions associated with HIV.
Traditional treatments for AIDS/HIV in pregnant women
At Boston Children's Hospital AIDS Program (CHAP), our researchers are studying once-a-day and combination therapies with the goal of simplifying treatment. We're also working to determine the impact of combining strong anti-viral therapy with medications to a co-infection, such as tuberculosis, to make sure drugs continue to be effective when combined. Internationally, our research focuses on preventing transmission, designing pediatric anti-viral treatments, vaccine testing and preventing tuberculosis in children with HIV.
At Children's, we consider you and your child integral parts of the care team and not simply recipients of care. You and your care team will work together to customize a plan of care for your child.
Prevention: The best treatment
Because HIV/AIDS is incurable, the best treatment is avoiding infection.
Here are a few tips for pregnant women to reduce the chances of passing the infection to their babies:
It's essential to remember that while hearing that your child is infected with HIV can feel very isolating, many children and their families have been down this path before. We've helped them, and we can help you, too. There are lots of resources available for your family—within Children's, in the outside community and online. These include:
Patient education:From the very first visit, our nurses will be on hand to walk you through your child's treatment and help answer any questions you may have. And they'll also reach out to you by phone, continuing the care and support you received while at Children's.
Parent to parent: Want to talk with someone whose baby has been treated for congenital syphilis? We can put you in touch with other families who have been through similar experiences and can share their experience.
Faith-based support:If you are in need of spiritual support, we'll help connect you with the Children's chaplaincy. Our program includes nearly a dozen clergy representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions who will listen to you, pray with you and help you observe your own faith practices during the time you and your child are in the hospital.
Social work and mental health professionals: Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as coping with your child's diagnosis, stresses relating to coping with illness and dealing with financial difficulties.
On our For Patients and Families site, you can read all you need to know about:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”