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There are many ways you can help children and their families get the care they need.
Chronic intestinal pseudo-obstruction (CIP) is a rare disorder that is is often diagnosed in childhood.
While intestinal pseudo-obstruction may affect people at any age, once present it is a life-long condition. Approximately 100 infants are born with congenital CIP in the U.S. every year.
In patients with CIP, nerve and muscle problems affect how food, fluid, stool and air move through the intestines. The disorder is called pseudo-obstruction because the symptoms are similar to those caused by an obstruction blocking the intestines, though there is no real anatomic obstruction.
CIP prevents fluids and food from moving though the gastrointestinal tract (stomach and intestines). Symptoms vary, depending on which portion of the intestinal tract is affected. Common symptoms include:
The lack of movement prevents the body from absorbing the nutrients it needs to function. As a result, many children suffer from symptoms of malnutrition, such as failure to thrive, and do not gain weight normally. As a result, it is common for doctors to suspect and diagnose this condition soon after birth or before age 1.
Because the symptoms of CIP may mimic those of other conditions, including a real obstruction, your child’s doctor may need to order several tests before a formal diagnosis.
Your child’s doctor may order one or more of the following tests and procedures:
Read more about GI motility testing services at Boston Children’s.
There is no cure for chronic intestinal pseudo-obstruction. Our approach to care focuses on treating symptoms and preventing complications, but at Boston Children’s, it goes beyond that. We take into account all of your child’s health needs, physical and emotional, to provide complete support.
Our comprehensive treatment plans involve specialists across disciplines – including gastroenterologists, surgeons, pain management specialists, psychologists, a nutritional support team, and others – who work together to treat every aspect of this disorder.
Children with CIP are not able to eat normally, so they require alternative methods of nutrition. They may experience vomiting, pain and discomfort.
At our Motility and Functional Gastrointestinal Disorders Center, we develop a personalized care plan for your child that draws from the latest therapies and research available today.
Learn more about our GI motility treatments and approach to care at Boston Children’s.
For an appointment, more information or to obtain a second opinion for your child, please contact the Motility and Functional Gastrointestinal Disorders Center at 617-355-6055 or request an appointment online.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”