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There are many ways you can help children and their families get the care they need.
Crouzon syndrome, also known as craniofacial dysostosis, is a complex genetic birth disorder that may affect a child’s face, skull and teeth. In a child with this syndrome, premature fusion of certain skull bones (craniosynostosis) prevents the skull from growing normally and affects the shape of the head and face; sometimes causing increased pressure around the brain.
Common features of this syndrome include:
Crouzon syndrome occurs in one out of 61,000 newborns.
The Craniofacial Program at Boston Children's Hospital provides a team approach to the evaluation, diagnosis and treatment of children with this condition. Our experts work together to care for all your child’s needs, from diagnosis and counseling through treatment and follow-up.
Our extensive experience and commitment to innovative and compassionate care have established us as a national leader in treating children with conditions such as Crouzon syndrome.
Families seeking the very best care for their child come to the Craniofacial Program at Boston Children’s for our:
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email our program coordinator, firstname.lastname@example.org.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”