Treatment for Blue rubber bleb nevus syndrome

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What are the treatment options for blue rubber bleb nevus syndrome?

The treatment of children with blue rubber bleb nevus syndrome (BRBNS) is highly personalized based on the severity of the condition and the problems associated with it. Because the condition can affect so many different parts of the body, children with BRBNS often see clinicians and specialists from several medical fields.

The Vascular Anomalies Center (VAC) at Boston Children's Hospital brings together specialists from across the hospital to take a coordinated approach in caring for children with blue rubber bleb nevus syndrome. Depending on an individual child's needs, this could include:

  • blood transfusions and iron supplementation to treat anemia caused by gastrointestinal bleeding
  • sclerotherapy, where doctors inject a medicine called a sclerosant into an abnormal vessel, causing the vessel to clot and shrink
  • surgery to remove painful skin blebs or gastrointestinal blebs causing significant bleeding

In addition, the Boston Children’s Hospital specialists work closely with local physicians involved with the care of children with BRBNS who live in other states and countries.

Surgical removal of gastrointestinal blebs can be particularly difficult due to the high risk of bleeding. The surgeons and anesthesiologists who work with the VAC are some of the most experienced in the world in venous malformation removal from the skin and intestine.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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