Conditions + Treatments

Anencephaly in Children

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Overview

Anencephaly is a condition present at birth that affects the formation of your baby's brain and the skull bones that surround her head. Anencephaly results in only minimal development of the baby's brain.

Often, the brain lacks part or all of the cerebrum (the area of the brain that is responsible for thinking, vision, hearing, touch, and movement). There is no bony covering over the back of the head and there may also be missing bones around the front and sides of the head.

How Boston Children's Hospital approaches anencephaly

For expectant parents, finding out that there might be a problem, like anencephaly, with the health of your child understandably brings up questions, concerns and fears. The Advanced Fetal Care Center of Boston Children's Hospital supports the needs of families and referring physicians at every step of care for a wide range of congenital anomalies, from diagnosis and counseling through treatment and follow-up care. AFCC's groundbreaking work has significantly improved outcomes for babies with complex health concerns, while delivering hope and compassionate care to families along the way.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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