Conditions + Treatments

Treatments for Adamantinoma in Children

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Contact Dana-Farber/ Boston Children's

We know how stressful a diagnosis of adamantinoma can be, both for your child and for your whole family. That's why our physicians are focused on family-centered care: From your first visit, you'll work with a team of professionals who are committed to supporting all of your family's physical and psychosocial needs. We'll work with you to create a care plan that's best for your child.  

Treatment can vary greatly, depending on your child's situation, including the location and size of the tumor and whether the disease has recurred. Your child's doctor and other members of your care team will discuss the options with you in-depth.

Traditional treatments for an adamantinoma

Because adamantinomas do not generally respond to chemotherapy and radiation, the best treatment for your child probably involves surgery. The type of surgery your child receives will depend on the size and location of the tumor, and whether the cancer has spread. Depending on these factors, your child may either need: 

  • limb-salvage surgery to help preserve the limb by removing the tumor and some healthy tissue around the tumor
  • amputation if the tumor cannot be removed by limb-salvage surgery (for example, if the cancer involves major nerves and blood vessels) 

What is the recommended long-term care for children treated for an adamantinoma?
Children treated for an adamantinoma require regular follow-up to screen for recurrence and complications of treatment. A typical follow-up visit may include some or all of the following: 

  • a physical exam
  • laboratory testing
  • imaging scans

At these visits, your care team will check on your child's overall health and look for signs that the cancer may have returned.

What happens if my child's adamantinoma has returned?
An adamantinoma that has returned is generally treated through additional surgery.

Coping and support

In addition to providing exceptional medical care, Dana-Farber/Boston Children’s Cancer and Blood Disorders Center strives to also meet all of your family's emotional and quality-of-life needs.

We know that unfamiliar places, especially hospitals, often create anxiety and fear for a child. We also know this isn't an easy time or task for parents, who have their own fears and concerns about the situation. Our family support services will help address many of your needs and concerns.

Read about our resources and support services.

Boston Children’s is so much more than a hospital—it’s a community of researchers, clinicians, administrators, support staff, innovators, teachers, patients and families, all working together to make the impossible possible. ”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital
300 Longwood Avenue, Boston, MA 02115
For Patients: 617-355-6000
For Referring Providers: 844-BCH-PEDS | 844-224-7337