Interstitial Lung Disease Program

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The Interstitial Lung Disease Program at Boston Children's Hospital consists of an expert team of physicians, surgeons, nurses, nutritionists and social workers who assist in the care of children with interstitial lung disease.

Our multidisciplinary team provides a full diagnosis and evaluation of each child with interstitial lung disease. We work with families to plan individualized therapy depending on the specific condition. Our goal is to offer the best care of the child’s respiratory health, growth and nutrition. Additionally we provide education about pediatric interstitial lung disease and family support. If indicated, we also assist in arranging home health care support and supplies, transportation services, and visiting nursing services.

In addition, the Division of Respiratory Diseases provides expert review and opinion, as well as other services and support, for lung transplantation.

Our Interstitial Lung Disease Group is a part of the Children's Interstitial Lung Disease Research Network (ChILDRN) associated with the Children's Interstital Lung Disease (ChILD) Foundation.

Please visit the ChILD Foundation website for more information.

Rare disorders that are under the general category of pediatric interstitial lung diseases:

  • Acute interstitial pneumonia/pneumonitis

  • Alveolar capillary dysplasia

  • Alveolar hemorrhage syndromes (pulmonary capillaritis , acute idiopathic pulmonary hemorrhage of infancy, and idiopathic pulmonary hemosiderosis)

  • Aspiration associated lung disease

  • Autoimmune or rheumatologic related lung disease

  • Bone marrow transplant associated lung disease/Graft versus host lung disease

  • Bronchiolitis obliterans

  • Cryptogenic organizing pneumonia formerly known as bronchiolitis obliterans organizing pneumonia (BOOP)

  • Desquamative interstitial pneumonia

  • DNA repair disorders

  • Drug induced lung disease

  • Eosinophilic pneumonias

  • Follicular Bronchiolitis

  • Growth abnormalities

  • Hypersensitivity pneumonitis

  • Immune mediated lung disease

  • Immunocompromised host associated lung disease

  • Lymphocytic interstitial pneumonia

  • Lysosomal storage disorders

  • Neuroendocrine Hyperplasia of Infancy (NEHI)

  • Nonspecific interstitial pneumonia

  • Pulmonary Alveolar Proteinosis

  • Pulmonary Interstitial Glycogenosis (PIG)

  • Pulmonary alveolar microlithiasis

  • Pulmonary histiocytosis

  • Pulmonary lymphagiectasia

  • Pulmonary lymphangiomatosis

  • Pulmonary vascular disorders

  • Pulmonary sarcoidosis

  • Radiation induced lung disease

  • Surfactant gene mutation associated lung disease (SP-B, SP-C, ABCA3, TTF-1, GMCSF receptor)

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If you have questions or would like more information, please call:

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