Interstitial Lung Disease Program Overview

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Contact the Interstitial Lung Disease Program

  • 617-355-1900
  • International: +1-617-355-5209

Boston Children’s Hospital is a world leader in pediatric respiratory diseases, including interstitial lung disease (ILD or chILD). We specialize in innovative, family-centered care that supports you at every step on your child’s journey to health.

Our expertise

Our multidisciplinary team, including physicians, surgeons, nurses, nutritionists and social workers, provides a full diagnosis and evaluation of each child with interstitial lung disease (ILD). We work with families to plan individualized therapy depending on the specific condition. Our goal is to offer the best care of the child’s respiratory health, growth and nutrition. Additionally we provide education about pediatric interstitial lung disease and family support. If indicated, we also assist in arranging home health care support and supplies, transportation services, and visiting nursing services.

Our team, including specialists from pathology, radiology, surgery, immunology, rheumatology, gastroenterology, neonatology, lung transplant, critical care, and cardiology, holds monthly multi-disciplinary case conferences as well as weekly pulmonary ILD clinics to provide coordinated care on both an inpatient and outpatient basis.

Our Interstitial Lung Disease Program is a part of the Children's Interstitial Lung Disease Research Network (chILDRN) associated with the Children's Interstitial Lung Disease (chILD) Foundation. Learn more about our research.

About children’s interstitial lung disease

Interstitial lung disease is not a single disease; it includes many distinct chronic diffuse lung disorders, which fall under the umbrella diagnosis of Children’s Interstitial Lung Disease. Individually the disorders are rare, but collectively they are not. Symptoms can range from mild to severe and have different treatments and outcomes. Some of the disorders are specific to the lungs while others are pulmonary manifestations of systemic disorders. Learn more about ILD.

 

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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