Fetal Cardiology & Fetal Cardiac Intervention Program

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Contact the Fetal Cardiology Program

"We focus on what families want and need—comprehensive evaluation and expert treatment for the child and family as a whole—plus counseling, support and the special services they're going to need."

Wayne Tworetzky, MD, Director of Fetal Imaging, Senior Associate in Cardiology

Questions to ask

Questions for your Doctor?

About half of babies born with congenital heart defects can be diagnosed prior to birth. Download this checklist of key questions to ask at your next ultrasound appointment.

10 Years and 150 procedures later …

... Our Fetal Cardiology Program is still the innovation leader

On September 13, 2001, Boston Children's Hospital’s Fetal Cardiology Program - part of the #1 ranked Heart Center - made history: a team of Boston Children’s pediatric cardiologists—along with maternal/fetal medicine specialists at Brigham and Women's Hospital—opened a baby’s pinched heart valve while that baby was still in his mother's womb.

This was the first successful fetal cardiac intervention in the world!

Jack Miller, born two months later on November 21, continues to thrive—and, like our program itself—has turned 10 years old!

Without fetal intervention, Jack would have been born with a rare congenital heart defect called hypoplastic left heart syndrome (HLHS). If Jack had been born with this defect, he:

  • would have had a 70% chance of survival
  • would have needed three surgeries by age 3
  • might have needed a heart transplant later in life

Instead of three or more major procedures, Jack had just one—with a total cost savings to family and insurers of more than $500,000.

Since 2001, we’ve performed more than 150 fetal interventions, and our experienced, skilled clinical team has refined its techniques and process for ever-better outcomes.

Video: Panel discussion on fetal cardiac interventions

Experts at Boston Children’s talk about the latest in diagnosis and treatment options for patients with complex fetal cardiac anomalies.

An Expectant Parent’s Guide to Hypoplastic Left Heart Syndrome and Other Single Ventricle Defects

HLHS GuideWhen an expectant parent is prenatally diagnosed with a congenital heart defect, a surge of complex emotions can occur, including shock, anger and heartbreak. It is very difficult for a family to comprehend and retain the information that they learn during a fetal cardiology consult. Recognizing that parents are not likely in the right frame of mind to fully grasp a lot of information at their initial visit, we have created standardized educational materials. Terra Lafranchi, NP-C, our Fetal Cardiology Coordinator, most recently finished An Expectant Parent’s Guide to Hypoplastic Left Heart Syndrome and Other Single Ventricle Defects. As a result of extraordinary perseverance and valuable input from many amazing clinicians and families, the original simple four page handout on HLHS evolved to become a 55 page comprehensive guide for the short and long-term journey ahead. To request your copy, please fill out this form

The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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