Because of their complex nature, vascular anomalies call for more than medical care. In addition to our comprehensive, interdisciplinary clinical services, the Vascular Anomalies Center also provides information and support for patients and families.
Please send one email via the Boston Children's secure email portal to vascular@childrens.harvard.edu with the following clinical documents:
Once the photographs and clinical information are received, our team will be contact you to schedule an appointment.
The Vascular Anomalies Center needs the following clinical information before we can schedule your appointment:
Note: The pathology review is a specific service that will be billed to your insurance, with applicable patient cost sharing obligations (e.g. copayments, deductibles, co-insurances) as required by your insurance plan. If you are interested in learning about any applicable financial assistance that may be available for the billable service, please contact our Patient Financial Services Department at 617-355-3397.
We require all patients (if over 18) or the parent/guardian (for those patients under 18) to sign up for the MyChildren’s Patient Portal if they are seeking to upload clinical information. Otherwise, the information in the items outlined above can be sent via fax, mail, or a secured email. Please find the Vascular Anomalies Center mailing address below:
Vascular Anomalies Center
Boston Children's Hospital, BCH3476
300 Longwood Ave.
Boston, MA 02115
The clinical information and questionnaire will only be reviewed by a Boston Children’s clinician after all information in items listed above have been submitted. The clinical team will also schedule the timing of a full review of the clinical information based on the availability of the full team as well as current patient cases. Please note that as a pediatric institution, Boston Children’s may recommend that care and treatment be provided by an adult care facility based on the age and the clinical needs of each patient.
Recommendations from the conference will be conveyed by a letter approved by a VAC physician to the parent/guardian (or the patient if they are over the age of 18) and/or referring physician within three to four weeks following the review. If the team determines that the recommendations require a timelier response, there will be a secure email or phone call placed to the parents/guardian and/or patient.
Boston Children's VAC holds weekly interdisciplinary clinics. These clinics give patients with vascular tumors or vascular malformations and their families the opportunity to see more than one specialist during the same visit.
Because more complex vascular anomalies may involve multiple body systems, the ability to have multiple specialists in the room at the same time — each bringing their area of expertise — allows physicians to have an immediate back-and-forth interchange and share their assessments with one another, as well as with patients and family members. This allows us to accurately diagnose you or your child’s condition and propose a customized treatment plan that meets the individual needs of each patient.
At the end of your clinic visit, you will leave with a recommended treatment plan, and if needed, appointments for follow-up care.
The interdisciplinary clinics are held in the Longwood location.
In addition to the interdisciplinary clinics, medical clinics are held by many of the VAC physicians in various Boston Children’s locations. The VAC coordinators and nurse practitioners will work with you to determine the best clinic to meet your needs.
There are many different types of vascular anomalies, ranging from infantile hemangiomas to complex combination vascular malformations such as Klippel-Trenaunay syndrome. Once a diagnosis and plan of care are established, a specialized nurse practitioner can provide ongoing clinical evaluations and recommendations.
During the nurse practitioner clinic, a patient will meet with one of our highly experienced nurse practitioners, all of whom have specialized expertise in vascular anomalies. The nurse practitioners will:
The nurse practitioners also educate patients and families about their diagnosis, help to allay fears, and empower patients and parents.
During the clinic evaluation, the VAC nurse practitioner may determine that consultation with one or more of our physician specialists is in your or your child's best interest. The nurse practitioner may be able to arrange a physician consultation on the spot, or they will schedule a follow-up appointment for another time.
Depending on your child's possible diagnosis, we may perform one or more of the following during your visit:
This information is provided as a service to visitors to our website and does not represent an endorsement by the Vascular Anomalies Center or an assurance that the information in these sites is accurate and up to date. The most reliable source of information about vascular anomalies is a specialist associated with a major hospital.