Clinician Resources

Clinical and diagnostic services

With parental consent, Robert’s Program provides:

  • Undiagnosed disease evaluation: Investigates potential underlying medical vulnerabilities that may have contributed to the child's death.
  • Comprehensive medical history review: Includes a detailed examination of the child's medical records, as well as the mother's pregnancy and delivery records.
  • Family medical history assessment: Constructs a multi-generation family tree to identify hereditary health issues.
  • Genetic evaluation: Conducts in-depth genetic testing of the child and parents to understand the cause of death and assess risks to other family members.
  • Advanced autopsy procedures: Utilizes a standardized approach with specialized testing not typically available elsewhere.
  • Final report on conclusions from assessment to parents: Provides a thorough explanation of the findings from the assessment and any implications for living family members.
  • Consultation support for community therapists: Access to our clinical psychologist for guidance and collaboration with local mental health providers involved in the family’s care.
  • Referrals: Offers connections to healthcare providers for further evaluation if findings may affect the health of family members.
  • Ongoing communication: Ensures availability to answer questions and address concerns throughout the investigation.