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Frequently Asked Questions

Frequently Asked Questions What conditions will be included in the registry? There are many names used to describe lymphatic anomalies, and sometimes the same condition may have multiple names. Other conditions have significant overlap and learning about …
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Patient & Family Resources

See resources for patients and families from the Lymphatic Anomalies Registry.

Patient & Family Resources Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources: Alfie Milne Trust …
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Contact Us

Contact the Lymphatic Anomalies Registry.

Contact Us Registration inquiries To learn more about the registry and inquire about participation, please visit this link to fill out and submit a registration inquiry. Once you have submitted the form, a member of our study team will contact you …
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Conditions We Treat

Conditions We Treat We diagnose and treat infants and children with lymphatic diseases — rare conditions that involve abnormal growth of the body’s lymphatic vessels. Conditions we treat include: Central conducting lymphatic anomaly (CCLA) Gorham-Stout …
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Meet Our Team

Meet he Lymphedema Program team

Meet Our Team Image Arin K. Greene , MD, MMSc Vascular Anomalies and Pediatric Plastic Surgery Chair; Director Lymphedema Program; Laboratory Director Professor, Harvard Medical School Image Sumner A. Slavin , MD Co-Director, Lymphedema Program Associate …
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For Patients & Families

Information for patients and families from the Lymphedema Program.

For Patients & Families Lymphedema is a chronic, progressive disease which causes swelling, usually of the arms or legs, because of non-functioning lymphatic vessels. Over time, fat and scar tissue develop and further increase the size of the affected …
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For Providers

See information for providers from the Lymphedema Program.

For Providers The Lymphedema Program at Boston Children's aims to: Provide consultation, diagnosis, and management options Improve treatments through clinical and basic research Training and education Currently, we have an opportunity for one lymphedema …