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Frequently Asked Questions

Frequently Asked Questions Background information on FXS Did I do anything to cause fragile X syndrome? No. There is nothing you did before or during the pregnancy or after your child was born to cause FXS. Fragile X syndrome is genetic, which means it is …
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Patient Resources

See patient resources from the Fragile X Program.

Patient Resources The National Fragile X Foundation is an excellent source of information and support for families with children who have fragile X syndrome . Childhood Apraxia of Speech Association of North America (CASANA) is a national non-profit …
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Research & Innovation

See research and information from the Fragile X Program.

Research & Innovation Jonathan D. Picker, MBChB, PhD , previously chaired the Clinical and Professional Development Committee of the Fragile X Clinic and Research Consortium (FXCRC) and led the development of the FXCRC guidelines. Lisa Prock, MD, MPH , is …
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Your Visit

Information about your visit to the Fragile X Program.

Your Visit What to do before your appointment Planning ahead and being prepared helps ease the way and decrease your wait. If you are seeing any specialists or therapists outside the Boston Children's Hospital network, we ask that you complete release of …
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Contact Us

Contact and find the Fragile X Program.

Contact Us Reach us 2 Brookline Place Brookline, MA 02145 Phone: 617-355-6394 (Genetics clinic) Fax: 617-730-0466 Find us We’ve moved! The Fragile X Program is now located on the fourth floor of the brand new 2 Brookline Place building. Arrive at 2 …