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Information for Patients & Families
Resources at Boston Children’s CDKL5 Clinic
- Occupational therapy
- Physical therapy
- Speech/assistive technology
- Augmentative Communication Program
- Social work
- Primary care
- Care coordination (expertise provided by Richard Antonelli, MD, MS)
- Other specialists affiliated with the Rett Syndrome Program (such as cardiologists) are also available if needed.
External information and resources
The International Foundation for CDKL5 Research has a website full of information about the condition, research, and family support.