Meet Our Team

Our CDKL5 Center of Excellence is led by neurologist Heather Olson, MD, in Boston Children’s Division of Epilepsy and Clinical Neurophysiology and section of neurogenetics and behavioral neurology.

The team also involves physicians from a variety of specialties including: Neurology, Neuro-Ophthalmology, Orthopedics, Gastroenterology, Feeding team, and Genetics.

Attendings

David K. Urion , MD, FAAN

Director of Education, Department of Neurology; Director of Behavioral Neurology Clinics and Programs, Department of Neurology
Associate Professor of Neurology, Harvard Medical School

Ryan Gise , MD

Attending Physician, Department of Ophthalmology
Assistant Professor of Ophthalmology, Harvard Medical School

Gena Heidary , MD, PhD

Ophthalmologist, Department of Ophthalmology; Director, Neuro-Ophthalmology Service, Director, Pediatric Ophthalmology Fellowship Program
Associate Professor, Harvard Medical School

M. Timothy Hresko , MD

Orthopedic Surgeon, Orthopedics and Sports Medicine Department; Director of Spine Research and Quality Improvement, Department of Orthopedic Surgery
Professor of Orthopedic Surgery, Harvard Medical School
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William Hong, MD

Maireade McSweeney , MD, MPH

Director, Gastroenterology Quality Improvement & Patient Safety; Gastroenterologist, Division of Gastroenterology, Hepatology and Nutrition; Co-Director, Enteral Tube Program
Assistant Professor of Pediatrics, Harvard Medical School

Speech-Language Pathologists

Kara Larson , MS, CCC-SLP

Director, Feeding and Swallowing Program; Speech-Language Pathologist; Clinical Coordinator, Department of Otolaryngology and Communication Enhancement; Speech Programs

Genetic Counselors and Counseling Assistants

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Brynn Heslin, BA

Administrative

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Anastasia Kokhanova

Program Coordinator of Neurogenetics, Department of Neurology