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Meet Our Team

Our CDKL5 Center of Excellence is led by neurologist Heather Olson, MD, in Boston Children’s Division of Epilepsy and Clinical Neurophysiology. Also on the faculty of Harvard Medical School, Dr. Olson previously trained at Mayo Medical School and completed residencies and fellowships at Harvard Medical School/Boston Children's. She has received the Infantile Spasms Award from the Child Neurology Foundation and has multiple publications in the field of epilepsy genetics. She also participates in Boston Children’s Epilepsy Genetics Program and Fetal-Neonatal Neurology Program, broadening her expertise in managing neurologic challenges in children with CDKL5 mutations.

The team also involves physicians from a variety of specialties including: Neurology, Neuro-Ophthalmology, Orthopedics, Gastroenterology, Feeding team, and Genetics.

Attendings

David K. Urion, MD, FAAN

David K. Urion , MD, FAAN

Director of Education, Department of Neurology; Director of Behavioral Neurology Clinics and Programs, Department of Neurology
Associate Professor of Neurology, Harvard Medical School
Elana M. Bern, MD, MPH

Elana M. Bern , MD, MPH

Co-Director, ARFID Program; Gastroenterologist, Division of Gastroenterology, Hepatology and Nutrition
Assistant Professor of Pediatrics, Harvard Medical School
Gena Heidary, MD, PhD

Gena Heidary , MD, PhD

Ophthalmologist, Department of Ophthalmology; Director, Neuro-Ophthalmology Service, Director, Pediatric Ophthalmology Fellowship Program
Associate Professor, Harvard Medical School
M. Timothy Hresko, MD

M. Timothy Hresko , MD

Orthopedic Surgeon, Orthopedics and Sports Medicine Department; Director of Spine Research and Quality Improvement, Department of Orthopedic Surgery
Professor of Orthopedic Surgery, Harvard Medical School
Jonathan Picker, MD, PhD

Jonathan Picker , MD, PhD

Director, Fragile X Program; Director, Pharmacogenomic Service; Assistant in Medicine, Division of Genetics and Genomics
Assistant Professor, Harvard Medical School

Speech-Language Pathologists

Kara Larson, MS, CCC-SLP

Kara Larson , MS, CCC-SLP

Director, Feeding and Swallowing Program; Speech-Language Pathologist; Clinical Coordinator, Department of Otolaryngology and Communication Enhancement; Speech Programs

Genetic Counselors and Counseling Assistants