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If your child has Sturge-Weber syndrome, it means that she was born with a vascular birthmark and neurological abnormalities.
Seizures develop in 75 to 90 percent of all children with the syndrome. The seizures often start before a child reaches age 1 and may worsen as she gets older.
About one-third of children with the syndrome have congenital (present at birth) glaucoma on the side with what’s called a port wine stain.
The total number of people with SWS is not known, but estimates range from one in 40,000 to one in 400,000.
How Boston Children’s Hospital approaches Sturge-Weber syndrome
The Sturge-Weber Syndrome Clinic at Children's is a national leader in the care of children with Sturge-Weber syndrome, providing comprehensive evaluation and treatment services to children from birth to adulthood. Our team includes specialists in the fields of:
We also work closely with your child's pediatrician to ensure that she receives individually tailored care that meets all of her needs.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”