Sturge-Weber syndrome in children

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Contact the Sturge-Weber Syndrome Clinic

If your child has Sturge-Weber syndrome, it means that she was born with a vascular birthmark and neurological abnormalities.

  • Seizures develop in 75 to 90 percent of all children with the syndrome. The seizures often start before a child reaches age 1 and may worsen as she gets older.
  • About one-third of children with the syndrome have congenital (present at birth) glaucoma on the side with what’s called a port wine stain or capillary malformation.
  • The total number of people with SWS is not known, but estimates range from one in 40,000 to one in 400,000.

How Boston Children’s Hospital approaches Sturge-Weber syndrome

The Sturge-Weber Syndrome Clinic at Children's is a national leader in the care of children with Sturge-Weber syndrome, providing comprehensive evaluation and treatment services to children from birth to adulthood. Our team includes specialists in the fields of:

We also work closely with your child's pediatrician to ensure that she receives individually tailored care that meets all of her needs.

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944