#1 Ranked Children’s Hospital by U.S. News & World Report
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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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Because better medical care is allowing many people with Rett syndrome to live longer, there is a lot that needs to be learned about how the disease progresses, what the quality of life is for patients and what we can do to further improve care.
Boston Children’s is one of four institutions working together to study the natural history of Rett syndrome through the Rare Diseases Clinical Research Network. Researchers from Boston Children's Hospital travel around the United States to evaluate children and adults as part of this study. The study is funded by the National Institutes of Health, including its Office of Rare Diseases Research.
Pharmacological Treatment of Rett Syndrome by Stimulation of Synaptic Maturation with Recombinant Human IGF-1 (mecasermin [rDNA] injection)
Principal Investigator: Mustafa Sahin, MD, PhD
For information about the IGF-1 trial:
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”