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Parry-Romberg syndrome is also known as progressive facial hemiatrophy. It is a condition that starts in childhood and usually affects half of the face. In rare cases, both sides of the face are affected.
The signs and symptoms of Parry-Romberg are very different from person to person and range from mild to severe. The most common symptom is the thinning or shrinkage (atrophy) of the skin, soft tissues, and in some cases muscle, cartilage and bone.
Because it is a progressive condition, the symptoms worsen over time before entering a stable phase. The deterioration of the muscle and tissue includes areas around the nose, mouth, tongue, eyes, brow, ears, and neck.
The evident physical changes may include:
Systemic associations may include:
Parry-Romberg syndrome is overall more common in girls. The cause of this disease is still unknown. Some factors thought to cause this disease include:
For an appointment with the Cleft and Craniofacial Center, more information or to obtain a second opinion for your child, please call us at 617-355-6309 or email firstname.lastname@example.org.
For families residing outside of the United States, please call Boston Children's International Health Services at +01-617-355-5209.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”