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There are many ways you can help children and their families get the care they need.
A: The severity of hydrocephalus can vary widely from child to child. The good news is that most children do well with treatment. Children who have hydrocephalus that is very advanced when diagnosed or have another complication may need more long-term treatments.
Your clinician can give you a better sense of what your child will need over the long term, depending on his or her individual condition.
A: Experts estimate that as many as one in 500 children is born with hydrocephalus.
A: The amount of physical activity your child can do will depend on your child’s age and symptoms. Ask your child’s clinician about specific restrictions for your child.
Head trauma can make hydrocephalus worse, so your child should always wear a helmet for activities like bike riding.
A: Since hydrocephalus is a progressive condition — the symptoms get more severe over time — most children eventually need some type of surgery.
A: Tell your doctor if you notice a change in your child’s:
You should seek medical help right away if your child has:
A: Boston Children’s Advanced Fetal Care Center can diagnose babies with congenital problems like hydrocephalus before they are born.
A: While there is no cure for hydrocephalus, the treatments have an excellent success rate, especially with early diagnosis.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”