Craniopharyngioma Pediatric Patient Stories

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Contact the Brain Tumor Center

Dear Dr. Mandell,

Our son, Jonathan, was diagnosed with a craniopharyngioma brain tumor and had his first surgery in 2008 at an institution in Maryland where we reside. The tumor unfortunately recurred within three months. While doing our research, the name Michael Scott, MD, Boston Children’s neurosurgeon-in-chief, came up frequently. We contacted him for advice and he was kind enough to meet with us within a few days. He was gentle, kind, patient, thorough and efficient, and our decision to proceed with a second surgery with him was made before we left his office. In March, Jonathan underwent a very long, difficult surgery with Dr. Scott and Edward Smith, MD. Jonathan’s recovery went very smoothly.

Looking back, we realized that everything at Boston Children’s was in place and prepared from the moment we arrived, so our experience was unmatched to any other health care institution. The pre-op staff, anesthesiologists, PICU team, 9th floor team, physical therapists and spiritual advisors were all excellent and we felt were attentive to all our needs and concerns. Our deepest and most sincere praises and gratitude go out to Dr. Scott and Dr. Smith. We could not have asked for better pairs of hands to work on our son. There’s no doubt in our minds that we had the best from a technical standpoint, but also from a humanitarian standpoint.

We really want to convey that ever since Jonathan was diagnosed with his tumor, we’ve been living with anxiety, fear and a sense of despair. However, since our experience at Boston Children’s, we no longer feel the same way. Thank you to everyone for making a difficult time bearable for us.

Sincerely,

Bobby Altman and Aklil Getachew

We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”
- Sandra L. Fenwick, President and CEO

Boston Children's Hospital 300 Longwood Avenue, Boston, MA 02115 617-355-6000 | 800-355-7944

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