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There are many ways you can help children and their families get the care they need.
"Our chief surgical goals with cleft foot are to close the cleft and to optimize the foot's function and appearance. At Boston Children's, we take an individualized approach to each child's limb difference or congenital difference - including for this extremely rare condition - because no two cases are alike."
--Samantha Spencer, MD, orthopedic surgeon, Boston Children's Hospital
At Boston Children's Hospital, we understand your concern if your baby was born with a cleft foot. Our Orthopedic Center will approach your child’s condition with care and support—for your child and your whole family.
• A diagnosis of cleft foot means that your child’s foot has a deepened space that extends toward the ankle;
there may be missing toes or other anatomical anomalies.
• Clefts are usually V-shaped.
• The condition is present and visible at birth (congenital).
• There’s a clear genetic basis for a typical cleft foot—the condition is commonly thought to be inherited.
• by itself (in isolation)
• along with a similar cleft of the hand (called split hand-split foot malformation, [SHFM] or ectrodactyly)
• as part of a genetic syndrome
• The condition in isolation is extremely rare, and is estimated to affect fewer than 1 in 1,000,000 babies.
• Most affected children—except those with very mild cases—need one or more surgeries, usually starting at around
1 or 2 years of age, when a child can tolerate surgery and anesthesia well.
• Surgery’s first goal is to improve the foot’s function.
• The second goal is to improve the foot’s shape and appearance, preferably before the child becomes aware that
her foot looks different from those of other children.
• Surgically re-shaping the foot increases the chances of the child being able to wear off-the-shelf shoes, instead of
costly custom-made shoes.
• When planning surgery, the surgeon must consider not just the bones of the foot, but also soft tissue, such as
ligaments and nerves.
The Orthopedic Center's Lower Extremity Program offers comprehensive assessment, diagnosis, surgical and non-surgical treatment of infants, children and teens with complex disorders of the lower extremities, including cleft foot.
With more than 5,000 pediatric visits per year, our multidisciplinary team of fellowship-trained, board-certified, pediatric orthopedic surgeons is one of the most experienced in the country.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”