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There are many ways you can help children and their families get the care they need.
We know how stressful a diagnosis of alveolar soft part sarcoma can be, both for your child and for your whole family. That's why our physicians are focused on family-centered care: From your first visit, you'll work with a team of professionals who are committed to supporting all of your family's physical and psychosocial needs. We'll work with you to create a care plan that's best for your child.
Your child's physician will determine a specific course of treatment based on several factors, including:
Treatment for alveolar soft part sarcoma can vary greatly, depending on your child's unique situation. Your child's doctor and other members of your care team will discuss the options with you in-depth.
Traditional treatments for alveolar soft part sarcoma
Surgery is the most common and effective treatment for most soft tissue sarcomas, particularly for alveolar soft part sarcoma that has not spread. These tumors tend to be unresponsive to chemotherapy.
Depending on the size and location of the tumor, your child may either need:
In addition to surgery, your child may need other types of treatment, including:
Our doctors use precisely targeted and dosed radiation to kill cancer cells left behind after your child's surgery. Radiation can also be given before surgery in order to shrink the tumor or in place of surgery to try to control tumor growth if surgery is not possible.
There is potential for blood loss during an operation to remove an alveolar soft part sarcoma because of the abnormal blood vessels that may be involved. As a result, surgery involves very careful planning.
In some cases, chemotherapy may be used to treat an alveolar soft part sarcoma. Chemotherapy is class of drugs that interferes with the cancer cell's ability to grow or reproduce.
While chemotherapy can be quite effective in treating certain cancers, the agents don't differentiate normal healthy cells from cancer cells. Because of this, there can be many adverse side effects during treatment. Being able to anticipate these side effects can help the care team, parents, and child prepare, and, in some cases, prevent these symptoms from occurring, if possible.
Chemotherapy is systemic treatment, meaning it is introduced to the bloodstream and travels throughout the body to kill cancer cells. Chemotherapy can be given:
The term “supportive care” refers to any type of treatment to prevent and treat infections, side effects of treatments and complications, and to keep your child comfortable during treatment. It is an important part of our care for all children receiving cancer treatment.
What is the recommended long-term care regimen for a child treated for alveolar soft part sarcoma?
Children treated for alveolar soft part sarcoma should visit a survivorship clinic every year to:
A typical follow-up visit may include some or all of the following:
Through the David B. Perini, Jr. Quality of Life Clinic at Dana-Farber Cancer Institute, childhood cancer survivors receive a comprehensive follow-up evaluation from their cancer care team.
In addition to providing medical care, the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center strives to also meet all of your family's emotional and quality-of-life needs.
We know that unfamiliar places, especially hospitals, often create anxiety and fear for a child. We also know this isn't an easy time or task for parents, who have their own fears and concerns about the situation. Our family support services will help address many of your needs and concerns.
Read more about our resources and support services.
We are grateful to have been ranked #1 on U.S. News & World Report's list of the best children's hospitals in the nation for the third year in a row, an honor we could not have achieved without the patients and families who inspire us to do our very best for them. Thanks to you, Boston Children's is a place where we can write the greatest children's stories ever told.”