Spinal Muscular Atrophy (SMA) Program | Meet Our Team

Our Spinal Muscular Atrophy (SMA) Program at Boston Children’s Hospital brings together diverse providers who are experts in the care of children with SMA. The program was created in 2004 and is directed by child neurologist Basil Darras, MD.

We have also created a network of other Boston Children’s specialists who are experienced in caring for children with SMA. This collaboration makes it easier for families to find providers in other specialties who are knowledgeable about SMA.

Attendings

Basil Darras

Basil Darras, MD

Associate Neurologist-in-Chief; Chief, Division of Clinical Neurology; Director, Neuromuscular Center and Spinal Muscular Atrophy Program Professor of Neurology, Harvard Medical School
Partha Sekhar Ghosh, MD

Partha Sekhar Ghosh, MD

Assistant, Department of Neurology Assistant Professor of Neurology, Harvard Medical School
Laurie Fishman, MD

Laurie Fishman, MD

Attending Physician, Division of Gastroenterology, Hepatology and Nutrition Associate Professor of Pediatrics, Harvard Medical School
Brian Snyder, MD, PhD

Brian Snyder, MD, PhD

Orthopedic Surgeon, Orthopedic Center Professor of Orthopedic Surgery, Harvard Medical School
 Colyn Watkins, MD

Colyn Watkins, MD

Orthopedic Surgeon, Orthopedic Center Instructor of Orthopedic Surgery, Harvard Medical School
Mary Dubon, MD

Mary Dubon, MD

Pediatric Rehabilitation Medicine Specialist, Orthopedic Center; Attending Physician, Sports Medicine Division
Charles Berde

Charles Berde, MD, PhD

Sara Page Mayo Chair, Pediatric Pain Medicine Professor of Anesthesia (Pediatrics), Harvard Medical School
Anjalie Koka

Anjali Koka, MD

Associate, Department of Anesthesiology, Critical Care & Pain Medicine Instructor of Anaesthesia, Harvard Medical School
Navil Sethna

Navil Sethna, MBchB

Clinical Director, Pediatric Pain Rehabilitation Center; Senior Associate in Perioperative Anesthesia, Department of Anesthesiology, Critical Care and Pain Medicine Associate Professor of Anaesthesia, Harvard Medical School
Bobbie Riley, MD

Bobbie Riley, MD, FAAP

Associate, Department of Anesthesiology, Critical Care & Pain Medicine Instructor of Anaesthesia, Harvard Medical School
Horacio Padua

Horacio M. Padua, MD

Staff Pediatric Interventional Radiologist; Staff Radiologist, Department of Radiology Assistant Professor of Radiology, Harvard Medical School
Scellig Stone, MD, PhD, FRCSC

Scellig S. D. Stone, MD, PhD, FRCSC

Neurosurgical Director, Movement Disorders and Deep Brain Stimulation Program; Director, Stereotactic and Functional Neurosurgery; Co-Director, Cerebral Palsy and Spasticity Center Assistant Professor, Harvard Medical School
Robert Graham

Robert Graham, MD

Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine Associate Professor of Anesthesia, Harvard Medical School

Nursing Staff

Jennifer McCrave, RN, BSN, CNRN

Jennifer McCrave, RN, BSN, CNRN

Registered Nurse, Department of Neurology
 Regina Laine, MSN, PNP-BC, CNRN

Regina Laine, MSN, PNP-BC, CNRN

SMA Program Nurse Coordinator and Pediatric Nurse Practitioner, Department of Neurology
Julie Shurtleff

Julie Shurtleff, RN, CPNP

Pediatric Nurse Practitoner, Critical Care, Anesthesia Perioperative and Home Ventlication (CAPE Program)
 Kathy Harney, RN, CPNP

Kathy Harney, RN, CPNP

Pediatric Nurse Practitioner, Critical Care, Anesthesia Perioperative and Home Ventlication (CAPE Program)

Nutritionist

Stacey Tarrant

Stacey Tarrant, RD, LDN

Clinical Nutrition Specialist, Division of Gastroenterology, Hepatology and Nutrition

Physical Therapist

Amy Pasternak, PT, DPT, PCS

Amy Pasternak, PT, DPT, PCS

Physical Therapist, Department of Physical Therapy and Occupational Therapy Services
Elizabeth Maczek, PT, DPT, PCS

Elizabeth Maczek, PT, DPT, PCS

Physical Therapist, Department of Physical Therapy and Occupational Therapy Services

Respiratory Therapist

 Lauren Perlman, BS, RRT

Lauren Perlman, BS, RRT

Registered Respiratory Therapist, Division of Pulmonary Medicine

Genetics Counselor

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Elicia Estrella, MS, LCGC

Senior Genetic Counselor, Department of Neurology and Division of Genetics