Robert’s Program | Frequently Asked Questions

What is your program and what do you do?

Our program works in collaboration with the Massachusetts Office of the Chief Medical Examiner (OCME) to give families who have experienced SUDP access to state-of-the-art testing, investigation and full explanation of any findings based upon the leading medical research.

What is your program’s relationship with the OCME and Massachusetts Center for SIDS?

We are a separate program from the state and work with them in a professional and academic partnership to offer the most advanced medical techniques to all of the families in Massachusetts who have dealt with SUDP.

How much does your program cost?

Our program is offered free of charge to all families who experience the death of a child under the age of three in Massachusetts.

What if I am not from Massachusetts?

Our clinical program only has the resources to see families who live in Massachusetts. If you are from outside of the state, Robert’s Program provides the opportunity to participate in research to help further medical knowledge on SUDP. *Please contact us if you are interested in being a part of our research.*

If I choose to participate, how long will I be involved with the program?

The time it for a complete evaluation of a child’s case varies based upon the individual circumstances. We work to keep you informed and updated on the progress of the case as we go on. Even after you have received our final reports, we welcome families to stay in touch and contact us with questions as new research develops.

Acronyms and Terminology

SUID: Sudden Unexplained Infant Death is the death of an infant younger than 1 year of age that occurs suddenly and unexpectedly with no evidence for cause of death.

SIDS: Sudden Infant Death Syndrome is the sudden death of an infant younger than 1 year of age that cannot be explained even after a full investigation that includes a complete autopsy, examination of the death scene, and review of the clinical history.

SUDC: Sudden Unexplained Death In Childhood is the sudden and unexpected death of a child over the age of 12 months, which remains unexplained after a thorough autopsy and case investigation is conducted.

SUDP: Sudden Unexpected Death in Pediatrics is an encompassing term regarding the sudden unexplained death of all children in the pediatric age range.

SUDEP: Sudden Unexpected Death in Epilepsy is the sudden, and non-traumatic and non-drowning death of a person with epilepsy, without a toxilogical or anatomical cause of death detected.

SCDY: Sudden Cardiac Death of the Young The sudden unexpected death in an otherwise healthy person within 1 hour after onset of symptoms or, when unwitnessed, within 24 hours after the person was last seen in good health.