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Boston Children's has launched the world's 1st program dedicated to offering hand transplants to children who qualify.
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We understand that you may have many questions if your child has been diagnosed with an early-onset epilepsy. There are a number of support groups available for patients with epilepsy and their family members. The following websites provide additional information about specific epilepsy syndromes, genetic variants, services, and support:
Citizens United for Research in Epilepsy (CURE)
The Cute Syndrome Foundation (PCDH19 Epilepsy)
Dravet Syndrome Foundation
Epilepsy Foundation New England
Insieme per la Ricerca PCDH19
Rare Epilepsy Network (REN)
Please note that neither Boston Children’s Hospital nor the Epilepsy Genetics Program at Boston Children’s Hospital unreservedly endorses all of the information found at the sites listed above.
The future of pediatrics will be forged by thinking differently, breaking paradigms and joining together in a shared vision of tackling the toughest challenges before us.”