Down Syndrome Program Patient Resources

The Down Syndrome Program is proud to offer many opportunities outside of the clinic to help support development and learning, health and wellness, and community building. These programs inspire families to think positively and brightly about the future of their children.

Development and learning

Literacy campaign

To promote reading, we are providing all children who come to Boston Children’s with a new book and literacy tip sheet. We are also starting the very first Boston affiliate of the Next Chapter Book Club for teens and young adults with Down syndrome. This club will meet weekly on Sunday afternoons at the Brookline Public Library.

'Mae’s Market'

We have a brand new virtual store, “Mae’s Market”, that allows us to provide families with items and materials to promote development, such as honey bear cups, Signing Times DVDs, and educational resources such as flashcards and early learning materials at no cost. In addition to distributing Signing Times DVDs to families, we offer an annual Introduction to Sign Language workshop.

Allen C. Crocker Speaker Series

The Down Syndrome Program offers the Allen C. Crocker Speaker series, a series of webinars on a range of topics related to Down syndrome. These talks are simultaneously webcast and recorded, and then are archived for future viewing.

Health and wellness

DS-Fit

DS-Fit is an eight-week fitness program for teenagers with Down syndrome with small group fitness classes and a home fitness program. The class currently meets on Saturday mornings at Boston Children’s Hospital Waltham.

Complex Needs Parent Support Group

The Complex Needs Parent Support Group is co-hosted by our Program and the Massachusetts Down Syndrome Congress. This group for parents of children with complex medical, neurodevelopmental, and mental health needs meets quarterly at Boston Children’s Hospital Waltham.

Yoga

Emily Davidson, MD, teaches an inclusive yoga class on Friday nights at the Martha Eliot Center for children with Down syndrome and their siblings and friends. 

Community building

A Time to Shine: We were proud to have hosted our first ever Fashion Show/Talent Show last spring. It was a huge success and so much fun for the families in our community to come together and cheer on the children and young adults walking the runway or performing on stage. More than 20 children, often accompanied by friends or siblings, took the stage.

Resources and guides

Boston Children’s Hospital Down Syndrome Program Brochure

Health Care Guidelines for Children with Down Syndrome (English and Spanish)

Boston Children’s Hospital Down Syndrome Program Resource Guide (English and Spanish)

Behavior Guide

Early Communication Guide