Have you just had a new baby?
For families who may be visiting our page for the first time and are the new parents of a child with Down Syndrome, we would love to highlight a starting point for you! We created a presentation called "Your Baby's First Year: What You Should Know!" that can be viewed online at anytime! We hope this presentation answers some questions, gives some guidance, and helps you while you get started on your new journey! More presentations can be viewed on our Speaker Series Recording page!
Congratulations on your new baby!
The Allen C. Crocker Speaker Series is designed to provide quality information from experts on a range of topics related to Down syndrome. The talks are presented monthly at Boston Children’s Hospital and are open to the public.
Understanding a Down Syndrome Diagnosis is a booklet that our Down Syndrome Program shares with expectant parents that visit us for a prenatal visit. It is also sold by Lettercase and was created with input from both the medical and Down syndrome communities, including representatives of ACOG, NSGC, ACMG, NDSC, and NDSS, to provide accurate, up-to-date, and balanced prenatal information about Down syndrome. The booklets cover available health and education services, common medical conditions for babies with Down syndrome, information about pregnancy options, and helpful resources about the condition. The booklets also include a Spanish translation and have been optimized for different reading levels. These booklets are now available for free download in English or Spanish for anyone with iPad, iPhone, ePub or Kindle!
Down Syndrome Pregnancy, Inc, a New Jersey charitable corporation, provides information and support to expectant parents preparing for the birth of a baby with Down syndrome. All of their materials are geared to non-political, honest, compassionate and informative support for those in post-diagnosis pregnancy or waiting until birth for a confirmed diagnosis. Down Syndrome Pregnancy offers a free, downloadable pregnancy book entitled Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome by Nancy McCrea Iannone and Stephanie Hall Meredith.
Massachusetts Down Syndrome Congress has a Parent First Call Program. They have trained, volunteer parents who make themselves and their knowledge available to expectant parents and parents of babies newly diagnosed with Down syndrome. They offer an opportunity to ask questions and share experiences, information on Down syndrome and assistance in locating services. All their services are free and confidential.
National Down Syndrome Congress offers an Expectant Parents Guide, articles and other information for expectant parents.
National Down Syndrome Society offers a video, brochure, and other informative resources for expectant parents.
More Down Syndrome Organizations
Massachusetts Down Syndrome Congress
National Down Syndrome Congress
National Down Syndrome Society
Benefits and Services
Supplemental Security Income (SSI)
Massachusetts Early Intervention
Massachusetts Department of Developmental Services
Programs and Organizations
ARC of Massachusetts
Federation for Children with Special Needs
Massachusetts Family Ties
Massachusetts Family Voices
Special Olympics of Massachusetts
National Dissemination Center for Children with Disabilities
Easter Seals of Massachusetts
Specific Health Topics
Obstructive Sleep Apnea
Healthy Snack Choices
Down Syndrome Education Online
Sign Language Resources
Down Syndrome Research and Treatment Foundation
Clinical Trials on Down syndrome
Educational Sites of Interest
See and Learn
Tar Heel Reader
IPAD Applications for Special Needs
Handwriting Without Tears
The Learning Program of Orange County
Woodbine House Publishing Company