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Research

See research from the Lung Transplant Program.

Research While a transplant can offer new hope and new opportunities, it also brings new obligations. To prevent rejection, your child will need to avoid certain situations, comply with restrictions and take medications for the rest of his or her life. …
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Volume & Outcomes

See volume and outcomes from the Lung Transplant Program.

Volume & Outcomes The Boston Children's Hospital Lung Transplant Program team tracks and reviews many different quality metrics related to the performance of our program. We use these metrics to constantly improve the care of children undergoing lung …
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Frequently Asked Questions

Frequently Asked Questions What conditions will be included in the registry? There are many names used to describe lymphatic anomalies, and sometimes the same condition may have multiple names. Other conditions have significant overlap and learning about …
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Patient & Family Resources

See resources for patients and families from the Lymphatic Anomalies Registry.

Patient & Family Resources Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources: Alfie Milne Trust …
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Contact Us

Contact the Lymphatic Anomalies Registry.

Contact Us Registration inquiries To learn more about the registry and inquire about participation, please visit this link to fill out and submit a registration inquiry. Once you have submitted the form, a member of our study team will contact you …
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Conditions We Treat

Conditions We Treat We diagnose and treat infants and children with lymphatic diseases — rare conditions that involve abnormal growth of the body’s lymphatic vessels. Conditions we treat include: Central conducting lymphatic anomaly (CCLA) Gorham-Stout …