Dr. Harvey Levy Program for Phenylketonuria and Related Conditions | Family Resources

These organizations offer support, networking, and education for families with phenylketonuria (PKU) and related disorders. While we provide these links as a resource, please note that neither Boston Children's Hospital nor the Dr. Harvey Levy Program for Phenylketonuria and Related Conditions unreservedly endorses all of the information found at the sites listed below. 

• New England Connection for PKU and Allied Disorders Inc.
• National PKU Alliance (NPKUA)
• HCU Network America: Resources and information on HCU
• MSUD Family Support Group
• National Urea Cycle Disorders Foundation